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The impact of a nurse-led support and education programme for spouses of stroke patients: a randomized controlled trial

Aims and objectives.  The aim of the present study was to determine the impact of a nurse‐led support and education programme for improving the spouses’ perceived general quality of life, life situation, general well‐being and health state. Background.  Stroke is a disease with great consequences fo...

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Published in:Journal of clinical nursing 2005-09, Vol.14 (8), p.995-1003
Main Authors: Larson, Jenny, Franzén-Dahlin, Åsa, Billing, Ewa, von Arbin, Magnus, Murray, Veronica, Wredling, Regina
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container_issue 8
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container_title Journal of clinical nursing
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creator Larson, Jenny
Franzén-Dahlin, Åsa
Billing, Ewa
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Murray, Veronica
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description Aims and objectives.  The aim of the present study was to determine the impact of a nurse‐led support and education programme for improving the spouses’ perceived general quality of life, life situation, general well‐being and health state. Background.  Stroke is a disease with great consequences for the patients and their families. The spouses often feel obligated to care for the patient, providing psychological and physical support and having to cope with the patient's physical and cognitive impairments. This might lead to increased problems, as family members struggle to adapt to their new roles and responsibilities. Design and methods.  Longitudinal, randomized controlled trial. One hundred spouses were randomly assigned to intervention or control groups, 50 in each group. The intervention group participated in a support and education programme, six times during six months, led by stroke specialist nurses. Both groups were followed for 12 months. Results.  No significant differences were found, between intervention and control groups, over time. In the sub analyses, we found that the group attending 5–6 times had a significant decrease in negative well‐being and increased quality of life over time, while the group attending fewer times had a significant decrease in positive well‐being and health state, similar to the control group, which also had a significant decrease in negative and general well‐being. Conclusions.  A support and education programme might have a positive effect on spouses’ well‐being, on condition that they attend at least five times. Relevance to clinical practice.  To facilitate the spouses’ role as informal caregivers to the stroke patients, further development of the support and education programme used in the present study is needed, including empowerment approach and implementation of coping strategies.
doi_str_mv 10.1111/j.1365-2702.2005.01206.x
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Background.  Stroke is a disease with great consequences for the patients and their families. The spouses often feel obligated to care for the patient, providing psychological and physical support and having to cope with the patient's physical and cognitive impairments. This might lead to increased problems, as family members struggle to adapt to their new roles and responsibilities. Design and methods.  Longitudinal, randomized controlled trial. One hundred spouses were randomly assigned to intervention or control groups, 50 in each group. The intervention group participated in a support and education programme, six times during six months, led by stroke specialist nurses. Both groups were followed for 12 months. Results.  No significant differences were found, between intervention and control groups, over time. In the sub analyses, we found that the group attending 5–6 times had a significant decrease in negative well‐being and increased quality of life over time, while the group attending fewer times had a significant decrease in positive well‐being and health state, similar to the control group, which also had a significant decrease in negative and general well‐being. Conclusions.  A support and education programme might have a positive effect on spouses’ well‐being, on condition that they attend at least five times. 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source Applied Social Sciences Index & Abstracts (ASSIA); Wiley
subjects Adaptation, Psychological
Adult
Aged
Aged, 80 and over
Analysis of Variance
Attitude to Health
Caregivers - education
Caregivers - psychology
Caring sciences
Clinical trials
Education
Evidence based
evidence-based practice
family care
Family support
Female
Health Education - organization & administration
Health Status
Home Nursing - education
Home Nursing - psychology
Hospitals, University
Humans
Longitudinal Studies
Male
Medicin och hälsovetenskap
Middle Aged
Nurse Clinicians - organization & administration
nurse education
Nurse led services
Nursing
Nursing Evaluation Research
Omvårdnadsvetenskap
Patients
Program Evaluation
Quality of Life
randomized controlled trials
Role
Self-Help Groups - organization & administration
Social Support
Spouses
Spouses - education
Spouses - psychology
stroke
Stroke - nursing
Strokes
Sweden
title The impact of a nurse-led support and education programme for spouses of stroke patients: a randomized controlled trial
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