A patient-centred evaluation of phantom skin wetness as a sensory symptom in people with multiple sclerosis

Background: A noticeable but unknown proportion of people with multiple sclerosis (pwMS) report the sudden experience of wetness on a dry skin site, i.e., phantom wetness. Yet, we lack patient-centred investigations on the prevalence and subjective experience of this uncomfortable symptom. Objective...

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Bibliographic Details
Main Authors: Aikaterini Christogianni, Richard Bibb, Ashleigh Filtness, Davide Filingeri
Format: Default Article
Published: 2021
Subjects:
Neurosciences
Multiple sclerosis
Phantom wetness
Personal experience
Online Access:https://hdl.handle.net/2134/21673925.v1
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Summary:Background: A noticeable but unknown proportion of people with multiple sclerosis (pwMS) report the sudden experience of wetness on a dry skin site, i.e., phantom wetness. Yet, we lack patient-centred investigations on the prevalence and subjective experience of this uncomfortable symptom. Objectives: To assess the prevalence of phantom wetness in pwMS, its association with individual factors, and subjective experience. Methods: 757 pwMS completed an online survey assessing the frequency and subjective experience of phantom wetness. We calculated descriptive statistics and odd ratios and performed a thematic analysis to extract a patient-centred description of phantom wetness. Results: 220 participants reported experiencing phantom wetness (29%). Females and those affected by Relapsing Remitting (RR) MS were 2.17 [1.39, 3.34] (p

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