Pathways to mental health-related quality of life for parents of children with autism spectrum disorder: roles of parental stress, children’s performance, medical support, and neighbor support

• Published in: Research in autism spectrum disorders 2016-03, Vol.23, p.122-130
• Main Author: Hsiao, Yun-Ju
• Format: Article
• Language: English
• Subjects: Autism spectrum disorder; Children performance; Medical support; Neighbor support; Parental mental health-related quality of life; Parental stress
• ISSN: 1750-9467; 1878-0237
• DOI: 10.1016/j.rasd.2015.10.008

•Parental stress was a critical factor for parental mental HRQOL.•Children’s performance had a direct effect on parental stress and an indirect effect on parental mental HRQOL through parental stress.•Medical support had a direct effect on parental mental HRQOL and an indirect effect on parental mental HRQOL through children’s performance and parental stress.•Neighbor support had a direct effect on parental mental HRQOL and an indirect effect on parental mental HRQOL through children’s performance and parental stress. Parental mental health-related quality of life affects the ability of a family to cope with and adapt to the presence of a disability in a family member, such as their child. Therefore, understanding variables that influence parental mental health-related quality of life in families of children with autism spectrum disorder is important. The purpose of this study was to examine the pathways to parental mental health-related quality of life, focusing on the variables of parental stress, children’s performance, medical support, and neighbor support. These variables were hypothesized to be interrelated with one another and directly or indirectly associated with parental mental health-related quality of life. Samples of this study were 429 parents of children with autism spectrum disorder aged 6–17 years in the United States. These parents were selected from the respondents interviewed over the telephone by the 2007 National Survey of Children’s Health. The item indicators selected from the survey were used to construct latent variables for the investigated variables. Structural equation modeling was used to analyze the data. Results showed that parental stress, children’s performance, medical support, and neighbor support played important roles in the pathways. Implications and limitations are discussed.