The impact of COVID‐19 on people with epilepsy: Global results from the coronavirus and epilepsy study

Objective To characterize the experience of people with epilepsy and aligned healthcare workers (HCWs) during the first 18 months of the COVID‐19 pandemic and compare experiences in high‐income countries (HICs) with non‐HICs. Methods Separate surveys for people with epilepsy and HCWs were distribute...

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Bibliographic Details
Published in:Epilepsia open 2024-10, Vol.9 (5), p.1931-1947
Main Authors: Vasey, Michael J., Tai, Xin You, Thorpe, Jennifer, Jones, Gabriel Davis, Ashby, Samantha, Hallab, Asma, Ding, Ding, Andraus, Maria, Dugan, Patricia, Perucca, Piero, Costello, Daniel J., French, Jacqueline A., O'Brien, Terence J., Depondt, Chantal, Andrade, Danielle M., Sengupta, Robin, Datta, Ashis, Delanty, Norman, Jette, Nathalie, Newton, Charles R., Brodie, Martin J., Devinsky, Orrin, Cross, J. Helen, Sander, Josemir W., Hanna, Jane, Besag, Frank M. C., Sen, Arjune
Format: Article
Language:English
Subjects:
access to healthcare
Adolescent
Adult
Convulsions & seizures
Coronaviruses
COVID-19
COVID-19 - epidemiology
Developed Countries
Electroencephalography
Epilepsy
Epilepsy - epidemiology
Female
First aid
Global Health
Health Personnel - psychology
Health Services Accessibility
High income
Humans
Industrialized nations
Male
Medical personnel
Mental health
Middle Aged
Original
pandemic response
Pandemics
Personal health
Polls & surveys
Questionnaires
SARS-CoV-2
seizure
Surveys and Questionnaires
telemedicine
Young Adult
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Summary:Objective To characterize the experience of people with epilepsy and aligned healthcare workers (HCWs) during the first 18 months of the COVID‐19 pandemic and compare experiences in high‐income countries (HICs) with non‐HICs. Methods Separate surveys for people with epilepsy and HCWs were distributed online in April 2020. Responses were collected to September 2021. Data were collected for COVID‐19 infections, the effect of COVID‐related restrictions, access to specialist help for epilepsy (people with epilepsy), and the impact of the pandemic on work productivity (HCWs). The frequency of responses for non‐HICs and HICs were compared using non‐parametric Chi‐square tests. Results Two thousand one hundred and  five individuals with epilepsy from 53 countries and 392 HCWs from 26 countries provided data. The same proportion of people with epilepsy in non‐HICs and HICs reported COVID‐19 infection (7%). Those in HICs were more likely to report that COVID‐19 measures had affected their health (32% vs. 23%; p 
ISSN:2470-9239
2470-9239
DOI:10.1002/epi4.13035