Necessity of Reparations for People with Dementia in Long Term Care: Empirical Perspectives

People living with dementia (‘PLWD’) have experienced significant human rights violations in long term care (‘LTC’) institutions, including institutionalisation, segregation, detention, violence, and neglect. Wide ranging and ongoing impacts of these violations on PLWD have not been redressed. This...

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Bibliographic Details
Published in:Scandinavian journal of disability research : SJDR 2024-07, Vol.26 (1), p.423-423–436
Main Authors: Steele, Linda, Swaffer, Kate
Format: Article
Language:English
Subjects:
access to justice
accountability
Dementia
Disability
Equal rights
Equality
Human rights
Institutionalization
institutions
long term care
Long term health care
People with disabilities
Qualitative research
redress
Reparations
Sex crimes
Violations
Violence
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Summary:People living with dementia (‘PLWD’) have experienced significant human rights violations in long term care (‘LTC’) institutions, including institutionalisation, segregation, detention, violence, and neglect. Wide ranging and ongoing impacts of these violations on PLWD have not been redressed. This article argues for reparations for PLWD who experience harm in LTC institutions. Building on international human rights norms on access to justice and reparations for human rights violations, the article presents empirical findings from a research project on perspectives on reparations of PLWD and their support networks. The article discusses justifications for reparations given by people living with dementia and their support networks. The article reports on six key reasons why reparations are necessary: recognise harm, validate people’s experiences of harm, recognition of equality and humanity of PLWD, equal access to justice, systems transformation, and accountability. The article presents implications of these empirical findings for disability human rights scholars and practitioners.
ISSN:1501-7419
1745-3011
DOI:10.16993/sjdr.1061