Understanding why people participate in HIV surveillance

People have argued that the benefits of human immunodeficiency virus (HIV) testing and counselling are so important that participants in HIV surveys must be given their HIV test results and that individuals who decline to receive their test results should be excluded from participation in such surve...

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Bibliographic Details
Published in:Bulletin of the World Health Organization 2015-05, Vol.93 (5), p.356-357
Main Authors: Zaba, Basia, Reniers, Georges, Slaymaker, Emma, Todd, Jim, Glynn, Judith, Crampin, Amelia, Urassa, Mark, Lutalo, Tom, Newell, Marie-Louise, Hosegood, Victoria, Clark, Samuel, Gregson, Simon
Format: Article
Language:English
Subjects:
Acquired immune deficiency syndrome
AIDS
Attitude to Health
Autonomy
Biomedical research
Blood
Counseling
Counselling
Demography
Ethics
Health
Health surveillance
HIV
HIV Infections - diagnosis
HIV Infections - psychology
HIV tests
Human immunodeficiency virus
Humans
Individuals
Medical tests
Participation
Population Surveillance
Public health
Public participation
Research ethics
Research Subjects - psychology
Round Table
Sentinel surveillance
Studies
Surveillance
Surveys
Utilities
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Summary:People have argued that the benefits of human immunodeficiency virus (HIV) testing and counselling are so important that participants in HIV surveys must be given their HIV test results and that individuals who decline to receive their test results should be excluded from participation in such surveys. In African populations with HIV prevalence above 4%, between 30% and 81% of infected men and women have ever been tested for HIV. Those who know they are HIV-positive may be willing to donate blood samples for research purposes but may not want to repeat pre- and post-test counselling. Importantly, the opt-out provisions the authors discuss here align with the general principles of research ethics. They agree that there is public health utility in informing people of their HIV status but they think that this should not override the ethics of respect for individual autonomy.
ISSN:0042-9686
1564-0604
DOI:10.2471/BLT.14.135756