Reporting incidental findings from non-biological assessments in human subject research

Incidental findings in research with human participants may have implications for a person’s present health or future health outcomes. Current guidelines focus on methods for handling and reporting incidental findings from biological test data but incidental findings might also arise from non-biolog...

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Bibliographic Details
Published in:Research Ethics 2022-07, Vol.18 (3), p.241-249
Main Authors: Pingitore, Alyssa, Mack, Ashley, Zhang, Justin, Devine, Eric G, Doerr, Jackson, Denneen, Caroline
Format: Article
Language:English
Subjects:
Alcohol Abuse
Autism
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Data Analysis
Diabetes
Diseases
Ethics
Futures (of Society)
Health
Health Behavior
Medical Research
Pervasive Developmental Disorders
Research Methodology
Risk
Risk Assessment
Screening Tests
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Summary:Incidental findings in research with human participants may have implications for a person’s present health or future health outcomes. Current guidelines focus on methods for handling and reporting incidental findings from biological test data but incidental findings might also arise from non-biological tests. This article presents three examples in which the results from non-biological test data can be predictive of future disease and should be disclosed to research participants. It is intended to increase awareness and facilitate further discussion about the reporting of incidental findings from non-biological data.
ISSN:1747-0161
2047-6094
DOI:10.1177/17470161221093877