Person-centred data collection methods to embed the authentic voice of people who experience health challenges

Originating from design science, codesign is defined as the engagement of patients and other consumers, to capture their experiences in the design or redesign, of healthcare services and is a central concept of health improvement initiatives.3 Codesign includes core principles of equity, understandi...

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Bibliographic Details
Published in:BMJ open quality 2020-07, Vol.9 (3), p.e000912
Main Authors: Prior, Sarah Jane, Mather, Carey, Ford, Karen, Bywaters, Danielle, Campbell, Steven
Format: Article
Language:English
Subjects:
Consumers
Data collection
Focus groups
Health administration
healthcare quality improvement
Interviews
Narrative Review
Participation
Patient-centered care
patient-centred care
Patients
Qualitative research
Quality control
Quality improvement
quality improvement methodologies
Research methodology
Skills
Verbal communication
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Summary:Originating from design science, codesign is defined as the engagement of patients and other consumers, to capture their experiences in the design or redesign, of healthcare services and is a central concept of health improvement initiatives.3 Codesign includes core principles of equity, understanding of experience and service improvement and provides an avenue for person-centred participation, recognising that consumer experience and knowledge is increasingly being considered important to complement professional knowledge.4 Direct engagement of patients and other consumers in research and health service improvement activities requires careful methodological planning around desirability and feasibility and the practical implications for the involvement of patients and consumer as participants.5 The following examples of person-centred research methods enable the authentic voice of individuals who experience health challenges to be collected. Each of the methods can be used to emphasise active participation by consumers in the design, delivery and evaluation of health services safety and quality systems. Interviews Interviews can be used to gather information as part of qualitative and quantitative data collection for research, education or quality assurance purposes. Studies have shown telephone or digital technology can be as effective as face-to-face interviews.8–10 However, other considerations are needed when telephone interviews are selected as a cost-effective method of data collection.
ISSN:2399-6641
2399-6641
DOI:10.1136/bmjoq-2020-000912