Protocol for the Sri Lankan Cerebral Palsy Register pilot study

IntroductionCerebral palsy (CP) describes a heterogeneous group of motor disorders resulting from disturbance in the developing brain. CP occurs in approximately 2.1 per 1000 live births in high-income countries, but in low- and middle-income countries (LMICs) the prevalence and severity of CP may b...

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Bibliographic Details
Published in:BMJ open 2020-08, Vol.10 (8), p.e039353-e039353
Main Authors: Heiyanthuduwage, Thilini Madushika, Sumanasena, Samanmali P, Kitnasamy, Gopi, Smithers Sheedy, Hayley, Khandaker, Gulam, Fernando, Romaniya, Wijesekara, Saraji, Jagoda, Jayatri, Ratnayake, Pyara, Wanigasinghe, Jithangi, Mclntyre, Sarah, Goldsmith, Shona, Waight, Emma, Badawi, Nadia, Muhit, Mohammad, Muttiah, Nimisha
Format: Article
Language:English
Subjects:
Adult
Births
Cerebral palsy
Cerebral Palsy - epidemiology
Child
developmental neurology & neurodisability
Epidemiology
Etiology
Humans
Longitudinal Studies
Neurology
Pediatrics
perinatology
Pilot Projects
Prevalence
Provinces
public health
Rehabilitation
rehabilitation medicine
Risk factors
Sri Lanka - epidemiology
Surveillance
Teaching hospitals
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Summary:IntroductionCerebral palsy (CP) describes a heterogeneous group of motor disorders resulting from disturbance in the developing brain. CP occurs in approximately 2.1 per 1000 live births in high-income countries, but in low- and middle-income countries (LMICs) the prevalence and severity of CP may be greater and aetiological risk factors different. In Sri Lanka, a LMIC, there have been no epidemiological studies of CP to date. Systematically collected data are required to identify opportunities for primary and secondary prevention, to plan and establish services to support children and adults with CP and their families and to act as a sampling frame for new research. Here we describe a pilot study protocol for a CP register in Sri Lanka.Methods and analysisThe aim of this study is to establish a CP register in Sri Lanka. We will use different surveillance methodologies in two provinces of Sri Lanka: hospital and community surveillance in the Western Province and community surveillance in the Eastern Province. A common record form will collect demographic, clinical and service data for children with CP
ISSN:2044-6055
2044-6055
DOI:10.1136/bmjopen-2020-039353