Live-born infants with cleft lip and/or cleft palate: contribution of speech pathology sciences to Sisnac/Nascidos vivos com fissura de labio e/ou palato: as contribuicoes da fonoaudiologia para o Sinasc

• Published in: Revista CEFAC 2015-03, Vol.17 (2), p.485
• Main Authors: de Santana, Tayza Mirella, de Pontes Silva, Millena Dias, Brandao, Stella Ramos, de Oliveira Camargo Gomes, Adriana, Pereira, Rui Manuel Rodrigues, Rodrigues, Mirella
• Format: Article
• Language: Spanish
• ISSN: 1516-1846
• DOI: 10.1590/1982-021620158014

Purpose: to characterize all cleft lip and/or cleft palate patients from a state reference center in Pernambuco and all live-born infants notified to Live Birth Information System. The aim was to measure the effectiveness of cleft lip and/or cleft palate patient notification in the System. Methods: it was developed an epidemiological study of children born in 2009 treated at the craniofacial malformation reference center, and cleft lip and/or cleft palate live-born babies (born in the same year) notified to SINASC. A deterministic linkage between both data sources matched the names, and those who were on the center's list, but did not appear in the system were considered sub-notifications. Results: a total of 138 patients were listed at the reference center. Of these, 37.70% were born with transforamen cleft and 66.40% were male. Seventy-eight live-born children with craniofacial malformation were notified to SINASC. Most were male, and an even distribution among cleft types was observed. Eighty-six of the 138 cases listed as patients at the centerwere not notified to SINASC. Therefore, 110.3% of the cases were sub-notified. Conclusion: the sub notification rate of cleft lip and/or palate cleft at SINASC is high. Although only data from Pernambuco were analyzed here, the national scenario is likely comparable. KEYWORDS: Cleft Lip; Cleft Palate; Information Systems; Live Birth Objetivo: caracterizar os casos de fissura de labio e/ou palato atendidos num centro de referencia do estado de Pernambuco e os nascidos vivos notificados ao Sistema de Informacao sobre Nascidos Vivos com essa malformacao, mensurando a subnotificacao dos casos de fissura nesse sistema. Metodos: desenvolveu-se um estudo epidemiologico, cuja populacao foram criancas nascidas em 2009 e atendidas no centro de referencia para deformidades craniofaciais em Pernambuco, e pelos nascidos vivos no mesmo ano, notificados ao Sinasc com a fissura. Realizou-se um linkage deterministico entre ambas as fontes de dados e foram considerados subnotificados os casos que constaram na lista de atendimentos do centro de referencia, mas que nao foram notificados no Sinasc. Resultados: dos 138 casos com fissura encontrados no Centro de Referencia, 37,70% nasceram com fissura transforame e 66,40% do sexo masculino. No Sinasc, foram notificados 78 nascidos vivos com essa malformacao, sendo a maioria do sexo masculino e com distribuicao homogenea em relacao ao tipo da fissura. Dos 138 casos localizados no Centro