Psychological distress in parents of children treated for cancer: An explorative study

• Published in: PloS one 2019-06, Vol.14 (6), p.e0218860-e0218860
• Main Authors: Carlsson, Tommy, Kukkola, Laura, Ljungman, Lisa, Hovén, Emma, von Essen, Louise
• Format: Article
• Language: English
• Subjects: Adolescent; Adult; Analysis; Anxiety; Biology and Life Sciences; Cancer; Cancer research; Cancer therapies; Care and treatment; Child; Child health; Child, Preschool; Children; Children & youth; Clinical psychology; Comorbidity; Content analysis; Diagnosis; Emotions; Emotions - physiology; Fathers; Fathers - psychology; Female; Health care; Humans; Infant; Interviews; Male; Medical diagnosis; Medicin och hälsovetenskap; Medicine and Health Sciences; Middle Aged; Mothers - psychology; Neoplasms - psychology; Oncology; Parents; Parents & parenting; Pediatrics; People and Places; Post traumatic stress disorder; Psychological aspects; Psychological Distress; Psychology; Psychotherapy; Psykologi; Qualitative analysis; Quality of life; Risk factors; Scars; Social Sciences; Stress (Psychology); Stress, Psychological - psychology
• ISSN: 1932-6203; 1932-6203
• DOI: 10.1371/journal.pone.0218860

To explore psychological distress experienced by parents who express a need for psychotherapy after curative treatment for their child's cancer. 15 parents (eight mothers and seven fathers) of children treated for cancer (median time since end of curative treatment: two years) were recruited via a pediatric oncology center. Each parent was interviewed twice and data was analyzed with inductive latent qualitative content analysis. Two overarching themes emerged. One theme, An unfamiliar and frightening situation during treatment, portrayed experiences during the treatment period, and included the sub-themes Initial reactions to the uncontrollable situation, Adjustment to the situation, and Focus on supporting the child. Another theme, Emotional struggles after end of curative treatment, portrayed experiences following curative treatment, and included the sub-themes Transitioning back to life as it was before the diagnosis, Emotional scars, Uncontrollable fears and worries of diseases, and New perspectives on life. Parents of children with cancer experience existential, physical, psychological, and social struggles. They describe an unstable situation after diagnosis and having focused their attention towards protecting their child during treatment. After the end of curative treatment, they experience challenges with transitioning back to life as it was before the diagnosis and dealing with their own emotional scars and fears related to the child's cancer. The findings indicate an unmet need for psychological support among parents of children treated for cancer.