Sickle cell disease among Latinx in California

After African Americans, Latinx are the second largest population affected by Sickle Cell Disease (SCD) in the U.S. However, research has largely ignored how this devastating rare blood disorder specifically affects Latinx nationwide. This study compared demographics, genotypes, primary insurance, a...

Full description

Saved in:
Bibliographic Details
Published in:PloS one 2022-10, Vol.17 (10), p.e0276653
Main Authors: Valle, Jhaqueline, Baker, Judith R, Madrigal, Daniel, Ferrerosa, Juana, Paulukonis, Susan
Format: Article
Language:English
Subjects:
Adult
Age groups
Anemia, Sickle Cell - diagnosis
Anemia, Sickle Cell - epidemiology
Anemia, Sickle Cell - genetics
Biology and Life Sciences
California - epidemiology
Comparative analysis
Data collection
Datasets
Delivery of Health Care
Demographic aspects
Demographics
Demography
Emergency medical care
Emergency medical services
Emergency Service, Hospital
Ethnicity
Female
Gender
Genotype & phenotype
Genotypes
Government programs
Health aspects
Health care
Health care policy
Health services utilization
Hispanic Americans
Hospitalization
Humans
Infant, Newborn
Medicaid
Medical screening
Medicine and Health Sciences
Minority & ethnic groups
Mortality
Pediatrics
People and places
Poverty
Race
Sickle cell anemia
Sickle cell disease
Statistics
Surveillance
United States - epidemiology
Utilization
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:After African Americans, Latinx are the second largest population affected by Sickle Cell Disease (SCD) in the U.S. However, research has largely ignored how this devastating rare blood disorder specifically affects Latinx nationwide. This study compared demographics, genotypes, primary insurance, and health care utilization among Latinx and non-Latinx Californians living with SCD, using data from the California SCD Data Collection Program (2016-2018) and newborn screening cases 2000-2017. Stemming from 6,837 SCD patients, 501(7%) were Latinx. Latinx with SCD (Lx-SCD) were statistically significantly younger than non-Latinx (NLx-SCD) counterparts. Within both groups, females predominated, with 70% being insured by Medicaid. Mean Emergency Department encounters were statistically significantly lower among Lx-SCD adults. Lx-SCD differ in age, genotype, and Emergency Department utilization, when compared to NLx-SCD counterparts in California. Latinx are now the largest racial and/or ethnic group in the US, and their presence in SCD population is expected to grow. Therefore, their specific demographic, genotypic, and health care utilization characteristics merit attention to inform policies and programs that will improve their health.
ISSN:1932-6203
1932-6203
DOI:10.1371/journal.pone.0276653