Experiences of African American Mothers of Sons with Autism Spectrum Disorder: Lessons for Improving Service Delivery

Previous research has indicated that having a child with autism spectrum disorder (ASD) presents a unique set of challenges that impacts the entire family unit and individual family members' health, well-being, and experiences across the lifespan (Patterson, 2005; Turnbull, Turnbull, Erwin, &am...

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Bibliographic Details
Published in:Education and training in autism and developmental disabilities 2018-03, Vol.53 (1), p.3-16
Main Authors: Lovelace, Temple S., Robertson, Rachel E., Tamayo, Sareska
Format: Article
Language:English
Subjects:
African American Children
African American Family
African Americans
Autism
Autism Spectrum Disorders
Behavior
Behavior Problems
Caregivers
Caring
Child & adolescent psychiatry
Children
Children & youth
Coping
Cultural differences
Cultural Influences
Developmental disabilities
Disability
Ethnicity
Families & family life
Family Environment
Grounded Theory
Interpersonal Relationship
Interviews
Mothers
Parent Attitudes
Parents
Parents & parenting
Peer Groups
Pervasive Developmental Disorders
Preschool education
Qualitative Research
Racial Factors
Researchers
Severe Disabilities
Sons
Special education
Stress
Studies
Well being
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Summary:Previous research has indicated that having a child with autism spectrum disorder (ASD) presents a unique set of challenges that impacts the entire family unit and individual family members' health, well-being, and experiences across the lifespan (Patterson, 2005; Turnbull, Turnbull, Erwin, & Soodak, 2006). Very few studies have addressed the role that racial and cultural identity may play in the experiences of these families, in particular, the experiences of African American families with children with ASD. The purpose of the present study was to qualitatively interview three African American caregivers of children with ASD to gain their perspectives on their experiences with their child and examine whether there may be a unique set of experiences associated with being an African American family of a child with ASD. Several themes emerged that suggested increased hardships for African American mothers of children with ASD. Implications of findings, including the need for a culturally-responsive approach across many domains of service (e.g., diagnosis, autism services, and special education services), are provided.
ISSN:2154-1647