Indigenous and Informal Systems of Support

When discussing costs, our intent is not so much to point out financial costs, which are often involved, but to show that costs to families can be more subtle, such as the erosion of family responsibility and satisfaction with the efforts the family makes on behalf of the child with a disability. [....

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Bibliographic Details
Published in:The Bilingual review 1999-01, Vol.24 (1/2), p.79-79
Main Authors: Begay, R. Cruz, Roberts, Richard N, Weisner, Thomas S, Matheson, Catherine
Format: Article
Language:English
Subjects:
Anxiety
Cerebral palsy
Child development
Children
Children & youth
Children with disabilities
Company business management
Costs
Culture
Disability
Disabled children
Early Intervention
English
Families & family life
Family Involvement
Family life education
Family Programs
Grandparents
Health Programs
Health services
Interviews
Language Impairments
Management
Maternal & child health
Medical Services
Navajo
Navajo (Nation)
Navajo language
Navajos
Preschool Education
Professionals
Public health
Public Schools
Referral
School Districts
Social aspects
Social Support Groups
Special education
Spiritual life
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Summary:When discussing costs, our intent is not so much to point out financial costs, which are often involved, but to show that costs to families can be more subtle, such as the erosion of family responsibility and satisfaction with the efforts the family makes on behalf of the child with a disability. [...]in the Navajo sample, families identified medical disabilities and sought help for medical problems from professionals but were sometimes unable to resolve their anxiety until they involved spiritual services or indigenous healing practices. Nearly 86% of the families said that they received financial help from their extended families. [...]several of the grandparents paid for ceremonies for their grandchildren by selling a rug or cattle. The important thing for representatives of outside agencies to remember is that it is critical to bring the family groups together to help the child and not supplant the positive effects the family has to offer in order to achieve positive results. [...]a father whose son has cerebral palsy explained: "There were some ladies down there that were with, I think it was, early intervention. [...]each family developed accommodations to their daily routine based on the ecological and cultural pressures that they faced.
ISSN:0094-5366
2327-624X