Perceived well-being and mental health in haemophilia

The investigation of mental health among persons with haemophilia is mostly focused on negative and disease-related indicators. Literature however shows that psychosocial resources and optimal daily functioning can co-exist with chronic disease. The Dual Continua Model operationalizes positive menta...

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Bibliographic Details
Published in:Psychology, health & medicine health & medicine, 2020-10, Vol.25 (9), p.1062-1072
Main Authors: Negri, Luca, Buzzi, Andrea, Aru, Anna Brigida, Cannavò, Antonino, Castegnaro, Claudio, Fasulo, Maria Rosaria, Lassandro, Giuseppe, Rocino, Angiola, Santoro, Cristina, Sottilotta, Gianluca, Giordano, Paola, Mazzucconi, Maria Gabriella, Mura, Rosamaria, Peyvandi, Flora, Delle Fave, Antonella
Format: Article
Language:English
Subjects:
Adult
Chronic illnesses
flourishing
Haemophilia
Health status
Health surveys
Hemophilia
Hemophilia A - psychology
Humans
Male
Mental Health
Middle Aged
Negative emotions
Personal Satisfaction
physical health
Positive emotions
Psychological well being
Psychosocial factors
Social well being
well-being
Young Adult
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Summary:The investigation of mental health among persons with haemophilia is mostly focused on negative and disease-related indicators. Literature however shows that psychosocial resources and optimal daily functioning can co-exist with chronic disease. The Dual Continua Model operationalizes positive mental health as 'flourishing', a condition comprising emotional, psychological, and social well-being dimensions. In the present study physical and mental health were comparatively assessed through positive and negative indicators in adults with haemophilia and a control group. Participants included 84 Italian persons with severe haemophilia (M age  = 43.44; SD age  = 13.04) and 164 adults without history of chronic illness (M age  = 40.98; SD age  = 12.26), who completed the Short Form Health Survey, the Positive and Negative Affect Schedule, and the Mental Health Continuum Short Form. MANOVA and post-hoc t-tests provided evidence of worse general health, lower negative affect and higher psychological well-being among participants with haemophilia compared with the control group. Moreover, the percentage of flourishing individuals was higher among participants with haemophilia. Results support previous evidence suggesting that a chronic disease does not prevent mental well-being attainment. The identification of assets and strengths allowing people with haemophilia to flourish can be fruitfully used to design resource-centered interventions.
ISSN:1354-8506
1465-3966
DOI:10.1080/13548506.2020.1717556