A self-regulation intervention can improve quality of life for families with food allergy

• Published in: Journal of allergy and clinical immunology 2012-07, Vol.130 (1), p.263-265.e6
• Main Authors: Baptist, Alan P., MD, MPH, Dever, Sara I., MD, Greenhawt, Matthew J., MD, MBA, Polmear-Swendris, Nancy, RN, MS, McMorris, Marc S., MD, Clark, Noreen M., PhD
• Format: Article
• Language: English
• Subjects: Adolescent; Adult; Allergic diseases; Allergies; Allergy and Immunology; Anxiety; Biological and medical sciences; Child; Child, Preschool; Children & youth; Chronic illnesses; Colleges & universities; Digestive allergic diseases; Education; Families & family life; Family; Female; Food; Food allergies; Food Hypersensitivity - psychology; Fundamental and applied biological sciences. Psychology; Fundamental immunology; Humans; Immunopathology; Intervention; Male; Medical sciences; Psychological aspects; Quality of Life; Questionnaires; Regression analysis; Sarcoidosis. Granulomatous diseases of unproved etiology. Connective tissue diseases. Elastic tissue diseases. Vasculitis; School safety; Self Care; Surveys and Questionnaires; Treatment Outcome
• ISSN: 0091-6749; 1097-6825
• DOI: 10.1016/j.jaci.2012.03.029

Highly confident Very confident Confident Somewhat confident Not at all confident 5 4 3 2 1 Table E2 Self-efficacy questionnaire UM food allergy packet From Food Allergy and Anaphylaxis Network pamphlets: "What you should know about living with food allergy," "Managing Food Allergies," "Food allergy basics" EpiPen information MedicAlert information brochure Health Education Resource Center bookmark Anaphylaxis Canada pamphlet: "Does someone you know have a life-threatening allergy" American Academy of Allergy, Asthma & Immunology pamphlet: "Food allergy" Food Allergy Initiative "Saving Lives" pamphlet Table E3 Allergy food packet contents Topic Concern about leaving the child with another adult Concern about the child having a reaction at school Difficulties in eating at a restaurant Nutrition concerns caused by excluded foods Sadness the parent feels about the stigma associated with food FAs Difficulties in meal preparation for the entire family Concern about letting the child attend social activities alone Concern about going on a vacation Table E4 Concerns frequently discussed with the nurse  Control (mean) Intervention (mean) P value FAQL-PB questionnaire factor    Limits social activities 2.88 2.05 .048 Concern over leaving child in care of others 2.80 1.73 .031 Self-efficacy factor    Confidence child is safe in the care of others 2.60 3.23 .039 Table E5 Final questionnaire significant mean changes (bivariate analysis) Factor β value P value 1° Outcome: Change in score   Anxiety related to FA 1.26 .004 Frustration over others' lack of appreciation 0.892 .039 Worry that cannot help child with food reaction 0.961 .023 Frightened that child will have a reaction 1.02 .006 2° Outcome: Final score   Concerned for child's health because of FA 0.873 .010 Troubled at having to leave child in care of others 1.16 .007 Confident that child is safe at school or with relatives (self-efficacy item) -0.752 .008 Table E6 Effect of the intervention on primary and secondary outcome factors after controlling for confounding through a linear regression model Factors entered into the regression model: group assignment, age, sex, years since diagnosis, race, history of anaphylaxis, median household income, number of allergic foods, and number of previous allergist's office visits.