Cochlear Implantation Among Deaf Children With Additional Disabilities: Parental Perceptions of Benefits, Challenges, and Service Provision

• Published in: Journal of deaf studies and deaf education 2015-01, Vol.20 (1), p.41-50
• Main Authors: Zaidman-Zait, Anat, Curle, Deirdre, Jamieson, Janet R., Chia, Ruth, Kozak, Frederick K.
• Format: Article
• Language: English
• Subjects: Access to Education; Access to Health Care; Adaptation, Psychological; Adolescent; Assistive Technology; Barriers; Child; Child, Preschool; Children; Cochlear Implantation; Cochlear implants; Communication Skills; Comorbidity; Coping; Deafness; Deafness - rehabilitation; Developmental disabilities; Disabilities; Disabled Persons; EMPIRICAL MANUSCRIPT; Empirical Research; Family Attitudes; Female; Hearing Impairments; Humans; Interpersonal Competence; Interviews; Male; Mixed Methods Research; Parent Attitudes; Parents & parenting; Parents - psychology; Pediatrics; Perception; Perceptions; Persons With Hearing Impairments; Surgery; Surveys; Surveys and Questionnaires; Thematic Approach; Well Being
• ISSN: 1081-4159; 1465-7325
• DOI: 10.1093/deafed/enu030

Although increasing numbers of children with additional disabilities are receiving cochlear implants (CIs), little is known about family perspectives of the benefits and the challenges of cochlear implantation in this pediatric population. This study examines perceptions among parents of deaf children with additional disabilities regarding satisfaction with service provision, benefits, and challenges of the CI process. This was a mixed-methods study, which included a survey and interviews. Twenty-three families of deaf children with additional disabilities participated in this study, and 17 of these parents participated in in-depth interviews regarding their child's experience with the CI, including benefits and challenges. Interviews were analyzed through inductive thematic analysis. Parent-perceived benefits of cochlear implantation included children's improved sound awareness, communication skills, and greater well-being compared to preimplantation status. However, the majority of families felt that they and their children were not receiving enough services. Major challenges included managing funding; coping with limited availability of specialized services, particularly in rural areas; and continuing concerns about the child's communication, social skills, and academic performance. Results suggest that children with additional disabilities benefit from CIs, but they and their families also face unique challenges that professionals should consider when working with these families.