A new scale for the measurement of quality of life in children with intellectual disability

•The KidsLife Scale evaluates the quality of life in children and adolescents with intellectual disabilities.•The KidsLife Scale contains 96 items organised in eight domains of quality of life.•The results suggest that the scale has appropriate reliability and validity.•The results could be very use...

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Bibliographic Details
Published in:Research in developmental disabilities 2016-06, Vol.53-54, p.399-410
Main Authors: Gómez, Laura E., Alcedo, Mª Ángeles, Arias, Benito, Fontanil, Yolanda, Arias, Víctor B., Monsalve, Asunción, Verdugo, Miguel Ángel
Format: Article
Language:English
Subjects:
Adolescence
Adolescent
Assessment
Child
Child, Preschool
Factor Analysis, Statistical
Female
Humans
Infancy
Intellectual Disability
Male
Psychometrics
Quality of Life
Reproducibility of Results
Test validation
Young Adult
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Summary:•The KidsLife Scale evaluates the quality of life in children and adolescents with intellectual disabilities.•The KidsLife Scale contains 96 items organised in eight domains of quality of life.•The results suggest that the scale has appropriate reliability and validity.•The results could be very useful to improve quality of life and implementation of evidence-based practices. Children and adolescents with intellectual disabilities make up a group which is in urgent need of an adequate operationalisation of the quality of life construct, not only to improve individual personal outcomes but also to develop and implement evidence based practices. For that reason, and with the aim of answering the growing demand for an adequate evaluation instrument for this group, the KidsLife scale was developed. This research provides evidence of the reliability and validity of the scale, which is composed of 96 items spread over eight subscales, and completed by a third-party respondent. The validation sample comprised 1060 people with intellectual disability, with ages ranging from 4 to 21 years old (M=13.51; SD=5.04). The results suggest that the eight quality of life domains assessed on the scale are reliable (Cronbach's alpha ranging from 0.812 to 0.949). The evidence of the validity of the construct provided by Confirmatory Factor Analysis also demonstrated adequate indexes of fit for the eight-domain model. Future lines of research which may use the KidsLife Scale are suggested and discussed.
ISSN:0891-4222
1873-3379
DOI:10.1016/j.ridd.2016.03.005