Differences in the diagnosis and management of systemic lupus erythematosus by primary care and specialist providers in the American Indian/Alaska Native population

• Published in: Lupus 2018-06, Vol.27 (7), p.1169-1176
• Main Authors: McDougall, J A, Helmick, C G, Lim, S S, Johnston, J M, Gaddy, J R, Gordon, C, Ferucci, E D
• Format: Article
• Language: English
• Subjects: Adult; Alaska Natives; Biomarkers; Classification; Deoxyribonucleic acid; Diagnosis; DNA; Documentation; Female; Humans; Hydroxychloroquine; Hydroxychloroquine - therapeutic use; Indians, North American; Lupus; Lupus Erythematosus, Systemic - diagnosis; Lupus Erythematosus, Systemic - drug therapy; Male; Medical records; Population; Population studies; Primary care; Primary Health Care; Specialization; Systemic lupus erythematosus
• ISSN: 0961-2033; 1477-0962
• DOI: 10.1177/0961203318763529

Objectives The objective of this study is to investigate differences in the diagnosis and management of systemic lupus erythematosus (SLE) by primary care and specialist physicians in a population-based registry. Methods This study includes individuals from the 2009 Indian Health Service lupus registry population with a diagnosis of SLE documented by either a primary care provider or specialist. SLE classification criteria, laboratory testing, and medication use at any time during the course of disease were determined by medical record abstraction. Results Of the 320 individuals with a diagnosis of SLE, 249 had the diagnosis documented by a specialist, with 71 documented by primary care. Individuals with a specialist diagnosis of SLE were more likely to have medical record documentation of meeting criteria for SLE by all criteria sets (American College of Rheumatology, 79% vs 22%; Boston Weighted, 82% vs 32%; and Systemic Lupus International Collaborating Clinics, 83% vs 35%; p