‘Urgent suspicion of cancer’ referrals to a head and neck clinic – what do patients expect?

• Published in: Journal of laryngology and otology 2019-09, Vol.133 (9), p.782-787
• Main Authors: Montgomery, J, Douglas, C M, Begbie, F, Hitchings, A, MacKenzie, K
• Format: Article
• Language: English
• Subjects: Alcohol; Colorectal cancer; Decision making; Employment; Head & neck cancer; Health education; Health literacy; Higher education; Main Articles; Oral cancer; Patient satisfaction; Perceptions; Questionnaires; R&D; Research & development; Socioeconomic factors; Systematic review
• ISSN: 0022-2151; 1748-5460
• DOI: 10.1017/S0022215119001543

Public awareness of 'red flag' symptoms for head and neck cancer is low. There is a lack of evidence regarding patient concerns and expectations in consultations for cancer assessment. This prospective questionnaire study examined the symptoms, concerns and expectations of 250 consecutive patients attending an 'urgent suspicion of cancer' clinic at a tertiary referral centre. The patients' most frequent responses regarding their concerns were 'no concerns' (n = 72, 29 per cent); 'all symptoms' were a cause for concern (n = 65, 26 per cent) and 'neck lump' was a symptom causing concern (n = 37, 17 per cent). The expectations of patients attending clinic were that they would find out what was wrong with them, followed by having no expectations at all. Overall patient knowledge of red flag symptoms was lacking and their expectations were low. Patients with non-cancer symptoms are frequently referred with suspected cancer. Patients with red flag symptoms are not aware of their significance and they have low expectations of healthcare.