Time for NIH to lead on data sharing

A draft policy is generally supportive but should start mandating data sharing The U.S. National Institutes of Health (NIH), the largest global funder of biomedical research, is in the midst of digesting public comments toward finalizing a data sharing policy. Although the draft policy is generally...

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Published in:Science (American Association for the Advancement of Science) 2020-03, Vol.367 (6484), p.1308-1309
Main Authors: Sim, Ida, Stebbins, Michael, Bierer, Barbara E, Butte, Atul J, Drazen, Jeffrey, Dzau, Victor, Hernandez, Adrian F, Krumholz, Harlan M, Lo, Bernard, Munos, Bernard, Perakslis, Eric, Rockhold, Frank, Ross, Joseph S, Terry, Sharon F, Yamamoto, Keith R, Zarin, Deborah A, Li, Rebecca
Format: Article
Language:English
Subjects:
Clinical Trials as Topic
Data retrieval
Financing, Government
Information Dissemination
Information sharing
Information Storage and Retrieval
National Institutes of Health (U.S.) - organization & administration
Open access
Policy
Research Support as Topic
United States
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Summary:A draft policy is generally supportive but should start mandating data sharing The U.S. National Institutes of Health (NIH), the largest global funder of biomedical research, is in the midst of digesting public comments toward finalizing a data sharing policy. Although the draft policy is generally supportive of data sharing ( 1 ), it needs strengthening if we are to collectively achieve a long-standing vision of open science built on the principles of findable, accessible, interoperable, and reusable (FAIR) ( 2 ) data sharing. Relying on investigators to voluntarily share data has not, thus far, led to widespread open science practices ( 3 ); thus, we suggest steps that NIH could take to lead on scientific data sharing, with an initial focus on clinical trial data sharing.
ISSN:0036-8075
1095-9203
DOI:10.1126/science.aba4456