Factors associated with follow-up of infants with hypoxic–ischemic encephalopathy in a high-risk infant clinic in California

Objective To determine the rates of high-risk infant follow-up (HRIF) attendance and the characteristics associated with follow-up among infants with hypoxic–ischemic encephalopathy (HIE) in California. Study design Using population-based datasets, 1314 infants with HIE born in 2010–2016 were evalua...

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Bibliographic Details
Published in:Journal of perinatology 2021-06, Vol.41 (6), p.1347-1354
Main Authors: Pai, Vidya V., Kan, Peiyi, Lu, Tianyao, Gray, Erika E., Bennett, Mihoko, Jocson, Maria A. L., Lee, Henry C., Carmichael, Suzan L., Hintz, Susan R.
Format: Article
Language:English
Subjects:
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Brain damage
Care and treatment
Caregivers
Diseases
Encephalopathy
Graduate schools
Graduate studies
Hypoxia
Infants
Infants (Newborn)
Ischemia
Medical care
Medicine
Medicine & Public Health
Minority & ethnic groups
Pediatric research
Pediatric Surgery
Pediatrics
Population studies
Risk groups
Statistics
Utilization
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Summary:Objective To determine the rates of high-risk infant follow-up (HRIF) attendance and the characteristics associated with follow-up among infants with hypoxic–ischemic encephalopathy (HIE) in California. Study design Using population-based datasets, 1314 infants with HIE born in 2010–2016 were evaluated. The characteristics associated with follow-up were identified through multivariable logistic regression. Results 73.9% of infants attended HRIF by age 1. Follow-up rates increased and variation in follow-up by clinic decreased over time. Female infants; those born to African-American, single, less than college-educated, or publicly insured caregivers; and those referred to high-volume or regional programs had lower follow-up rates. In multivariable analysis, Asian and Pacific Islander race/ethnicity had lower odds of follow-up; infants with college- or graduate school-educated caregivers or referred to mid-volume HRIF programs had greater odds. Conclusion Sociodemographic and program-level characteristics were associated with lack of follow-up among HIE infants. Understanding these characteristics may improve the post-discharge care of HIE infants.
ISSN:0743-8346
1476-5543
DOI:10.1038/s41372-020-00898-3