Integration of Palliative Care in Hematopoietic Cell Transplant: Pediatric Patient and Parent Needs and Attitudes

Early integration of palliative care (PC) in hematopoietic cell transplantation (HCT) has demonstrated benefits, yet barriers remain, including perceived lack of patient/caregiver receptivity despite no data on attitudes toward PC and limited patient/caregiver reported outcomes in pediatric HCT. Thi...

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Bibliographic Details
Published in:Journal of pain and symptom management 2023-09, Vol.66 (3), p.248-257
Main Authors: Levine, Deena R., Epperly, Rebecca, Collins, Griffin, Talleur, Aimee C., Mandrell, Belinda, Pritchard, Michele, Sarvode Mothi, Suraj, Li, Chen, Lu, Zhaohua, Baker, Justin N.
Format: Article
Language:English
Subjects:
caregivers
hematopoietic cell transplantation
Palliative care
patients
pediatrics
quality of life
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Summary:Early integration of palliative care (PC) in hematopoietic cell transplantation (HCT) has demonstrated benefits, yet barriers remain, including perceived lack of patient/caregiver receptivity despite no data on attitudes toward PC and limited patient/caregiver reported outcomes in pediatric HCT. This study aimed to evaluate perceived symptom burden and patient/parent attitudes toward early PC integration in pediatric HCT. Following IRB approval, consent/assent, eligible participants were surveyed at St. Jude Children's Research Hospital including English-speaking patients aged 10–17, 1-month to 1-year from HCT, and their parents/primary-caregivers, as well as parent/primary-caregivers of living HCT recipients
ISSN:0885-3924
1873-6513
DOI:10.1016/j.jpainsymman.2023.06.005