Dignity in the Pediatric Population: A Systematic Review

• Published in: Journal of pain and symptom management 2024-12, Vol.68 (6), p.e447-e461
• Main Authors: Silverstein, Allison, Easton, Veronica, Barrows, Cory, Sawyer, Kimberly, Coughlin, Rachel, Mali, Nidhi, Kessler, Amber, Robinson, Matthew, Sirrine, Erica, Spears, Madison, Wrigley, Jordan, Baker, Justin N, Kaye, Erica C
• Format: Article
• Language: English
• Subjects: Adolescent; Child; Child, Preschool; Dignity; Ethics; Humans; Infant; Infant, Newborn; Palliative Care; Palliative medicine; Patient rights; Pediatrics; Personhood; Quality of care; Respect
• ISSN: 0885-3924; 1873-6513; 1873-6513
• DOI: 10.1016/j.jpainsymman.2024.07.012

Children are a uniquely vulnerable patient population with restricted abilities for self-advocacy and autonomy, risking infringement upon their dignity. Yet the concept of dignity in pediatrics remains underexplored relative to the adult literature and other outcome measures. To characterize how dignity is defined, evaluated, and/or measured in pediatrics. We conducted a systematic review following PRISMA guidelines across the following databases: MEDLINE, Embase, Cumulative Index of Nursing and Allied Health, PsycINFO, Global Health, Social Science Premium Collection, and Dissertation and Theses. We included publications from database inception through April 2023, in English, involving children aged 0–18 years, and prioritizing dignity as a central theme with a focus on defining, evaluating, or measuring dignity. Study descriptions and pertinent characteristics were extracted and synthesized using a predefined form. Forty-four articles met inclusion criteria; fewer than half comprised original research (20/44, 45%). Most studies (38/44, 86%) included description of the meaning of dignity, with emergence of salient themes around respect, communication, agency/autonomy, and privacy. Less than half (19/44, 43%) included a measurement or evaluation of dignity; approximately one-third described dignity therapy. More than one-third of publications focused on dignity at end of life (17/44, 39%) and included discussions of palliative medicine and hospice (15/44, 34%). Relatively few published studies describe dignity in pediatrics. Opportunities exist to broaden scholarship on this topic in partnership with patients, families, and clinicians, with the goal of assessing and strengthening dignity-centered care across the illness course and at the end of life.