Multicenter Study on Caregiver Experiences in Pediatric Hematopoietic Stem Cell Transplantation: Part II. Treatment Challenges, Communication Barriers, and Caregiver-Driven Approaches to Mitigation

•Caregiver concerns shift from acute treatment issues to long-term recovery needs.•Communication gaps persist, highlighting the need for clear, family-centered education.•Caregivers use advocacy, peer support, and coping strategies to manage HSCT care. Hematopoietic stem cell transplantation (HSCT)...

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Published in:Transplantation and cellular therapy 2025-08, Vol.31 (8), p.590.e1-590.e16
Main Authors: Phelan, Rachel, Rotz, Seth, Dandoy, Christopher E., Auletta, Jeffery J., Badia, Priscila, Bhatt, Neel S., Ballard, Sheri A., Blacken, Robyn, Daraiseh, Nancy M., Desmond, Catherine, Dunseath, Chloe, Epling, Preston, Flesch, Laura, Huber, John, Jenssen, Kari, Kapadia, Malika, Kent, Georgia, Klunk, Anna, Kusnier, Katilyn, Lehmann, Leslie, Liberio, Nicole, Maier, Steffani, Myers, Kasiani C., O’Connor, Gabby, Pai, Ahna, Tarquini, Sarah, Fitch, Taylor J., Hartley, David
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adolescent
Adult
Caregivers - psychology
Child
Child, Preschool
Communication Barriers
Communication Strategies
COVID-19 - epidemiology
Family-Centered Care
Female
Hematopoietic Stem Cell Transplantation - adverse effects
Hematopoietic Stem Cell Transplantation - psychology
Humans
Infant
Knowledge Gaps
Longitudinal Studies
Male
Middle Aged
Patient-important outcomes
Pediatric hematopoietic stem cell transplant
Prospective Studies
Qualitative longitudinal research
Qualitative Research
SARS-CoV-2
Transplant complications
Treatment-related toxicity
Citations: Items that this one cites
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