Patients, privacy and trust: Patients’ willingness to allow researchers to access their medical records

The federal Privacy Rule, implemented in the United States in 2003, as part of the Health Insurance Portability and Accountability Act of 1996 (HIPAA), created new restrictions on the release of medical information for research. Many believe that its restrictions have fallen disproportionately on re...

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Bibliographic Details
Published in:Social science & medicine (1982) 2007, Vol.64 (1), p.223-235
Main Authors: Damschroder, Laura J., Pritts, Joy L., Neblo, Michael A., Kalarickal, Rosemarie J., Creswell, John W., Hayward, Rodney A.
Format: Article
Language:English
Subjects:
Access
Accountability
Aged
Archives & records
Attitudes
Clinical information
Confidentiality
Deliberative democracy
Ethics, Research
Female
Government Regulation
Health
Health care industry
Health insurance
Health Insurance Portability & Accountability Act 1996-US
Health Insurance Portability and Accountability Act
Health insurance portability and accountability act (hipaa)
Health Policy
Humans
Information
Male
Medical Records
Medical research
Middle Aged
Patient information
Patients
Patients - psychology
Patients rights
Privacy
Researchers
Rules
Small groups
Surveys and Questionnaires
Trust
U.S.A
United States
United States of America
USA
USA Deliberative democracy Trust Privacy Medical records Health insurance portability and accountability act (hipaa) Health policy
Welfare
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