Health-Related Quality of Life of Children and Adolescents with Chronic Illness: A Two Year Prospective Study

The aim of this study was to compare the self-reported health-related quality of life (HRQL) of children and adolescents with diabetes, asthma or cystic fibrosis (CF) with the HRQL of a large community sample, to assess the extent to which the HRQL of the children and adolescents with chronic illnes...

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Bibliographic Details
Published in:Quality of life research 2004-09, Vol.13 (7), p.1309-1319
Main Authors: Michael G. Sawyer, Katherine E. Reynolds, Jennifer J. Couper, Davina J. French, Declan Kennedy, Martin, James, Rima Staugas, Tahereh Ziaian, Baghurst, Peter A.
Format: Article
Language:English
Subjects:
Adolescent
Adolescents
Analysis of Variance
Asthma
Chi-Square Distribution
Child
Children
Children & youth
Chronic Disease - psychology
Chronic diseases
Chronic illnesses
Cystic fibrosis
Diabetes
Diseases
Emotional problems
Exercise
Female
Humans
Male
Prospective Studies
Quality of Life
Questionnaires
Surveys and Questionnaires
Teenagers
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Summary:The aim of this study was to compare the self-reported health-related quality of life (HRQL) of children and adolescents with diabetes, asthma or cystic fibrosis (CF) with the HRQL of a large community sample, to assess the extent to which the HRQL of the children and adolescents with chronic illness changes over time, and to examine the consistency of changes in different HRQL domains. One hundred and twenty three young people aged 10-16 years with asthma, diabetes, or CF were recruited from specialist paediatric clinics. Children rated their HRQL using the Child Health Questionnaire (CHQ) and three disease-specific measures at baseline, 6, 12, 18 and 24 months post-baseline. In several areas, the HRQL of children with chronic illness was significantly worse than that of children in the community sample. Over the 2 years of the study, although children with asthma and diabetes did not report significant changes in CHQ scores rating their physical health, they reported significant improvements in scores rating the extent to which health problems interfered with physical and family activities. CHQ scores describing their physical health reported by children with CF declined significantly but there was no significant change in scores rating interference with physical and family activities.
ISSN:0962-9343
1573-2649
DOI:10.1023/B:QURE.0000037489.41344.b2