Patients’ perceived barriers to active self-management of chronic conditions

Few studies have elicited barriers to patient self-management of chronic conditions, and only one concerned people with two or more conditions. To inform development of Homing in on Health (HioH), a home delivery variant of the Chronic Disease Self-Management Program (CDSMP), we conducted 10 focus g...

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Bibliographic Details
Published in:Patient education and counseling 2005-06, Vol.57 (3), p.300-307
Main Authors: Jerant, Anthony F., Friederichs-Fitzwater, Marlene M. von, Moore, Monique
Format: Article
Language:English
Subjects:
California
Chronic disease
Chronic Disease - psychology
Chronic Disease - therapy
Communication Barriers
Comorbidity
Disease Management
Female
Focus Groups
Health Knowledge, Attitudes, Practice
Health Services Accessibility - standards
Health Status
Home Care Services - organization & administration
Humans
Insurance, Health
Male
Middle Aged
Needs Assessment - organization & administration
Nursing
Patient Care Planning
Patient education
Patient Education as Topic - standards
Patient Participation - methods
Patient Participation - psychology
Problem Solving
Qualitative Research
Self Care - methods
Self Care - psychology
Self Care - standards
Self Efficacy
Self-care
Surveys and Questionnaires
Transportation
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Summary:Few studies have elicited barriers to patient self-management of chronic conditions, and only one concerned people with two or more conditions. To inform development of Homing in on Health (HioH), a home delivery variant of the Chronic Disease Self-Management Program (CDSMP), we conducted 10 focus groups involving 54 chronically ill people, 46 (85%) of whom had multiple conditions. The goals were to elicit perceived barriers to active self-management and to accessing self-management support resources. Depression, weight problems, difficulty exercising, fatigue, poor physician communication, low family support, pain, and financial problems were the most frequently noted barriers to active self-management. The most common barriers to accessing self-management support resources were lack of awareness, physical symptoms, transportation problems, and cost/lack of insurance coverage. Our findings provided initial support for the Homing in on Health approach, since many of the barriers identified may be more amenable to home-based intervention than to centralized, facility-based programs.
ISSN:0738-3991
1873-5134
DOI:10.1016/j.pec.2004.08.004