Research with children

In the United States we have very mixed feelings about research with human subjects. The Nuremberg Code (the Code), which provides a foundation for the protection of human subjects, was written by American judges in the context of trying Nazi doctors who committed atrocious acts of human experimenta...

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Bibliographic Details
Published in:American journal of law & medicine 1998-06, Vol.24 (2-3), p.213-244
Main Author: Glantz, L H
Format: Article
Language:English
Subjects:
Adolescent
Bioethics
Child
Child Advocacy - legislation & jurisprudence
Child, Preschool
Children & youth
Clinical Trials as Topic - legislation & jurisprudence
Federal Government
Federal regulation
Government Regulation
Humans
Infant
Informed Consent - legislation & jurisprudence
Judicial Role
Legal Guardians
Medical research
Medicine, Experimental
Minors
Nontherapeutic Human Experimentation
Parental Consent
Patient Selection
Pediatrics
Research - legislation & jurisprudence
Research Subjects
Risk Assessment
Siblings
Therapeutic Human Experimentation
Tissue and Organ Procurement
United States
Withholding Treatment
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Summary:In the United States we have very mixed feelings about research with human subjects. The Nuremberg Code (the Code), which provides a foundation for the protection of human subjects, was written by American judges in the context of trying Nazi doctors who committed atrocious acts of human experimentation on concentration camp inmates. The Code provides ten common-sense guidelines controlling research. For example, a researcher may not conduct research on human subjects without that subject's informed consent, or if there is an a priori reason to believe that the research will cause death or disabling injury to the subject. What is remarkable about the creation of the Code is that it was thought to be necessary to document and impose the most fundamental moral principles on researchers. The Code demonstrates a remarkable suspicion of research with human subjects and those who perform such research.
ISSN:0098-8588
2375-835X
DOI:10.1017/S0098858800010418