The daily lives and occupations of Tibetan families who have a child with disabilities

Abstract The aim of this paper is to explore and describe the experiences of Tibetan families living in remote villages that have a child with disabilities. Focusing on their specific situations and the influences on their daily occupations, the study provides a deeper understanding of the families&...

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Bibliographic Details
Published in:Scandinavian journal of occupational therapy 2010-12, Vol.17 (4), p.286-298
Main Authors: Scheidegger, Gaby, Lovelock, Linda, Kinébanian, Astrid
Format: Article
Language:English
Subjects:
Activities of Daily Living
Activities of daily living (ADL)
Asian Continental Ancestry Group
Attitude - ethnology
Attitudes
Caregivers
Child
Children
Culture
Disabled Children
ethnography
Family - ethnology
Family Health - ethnology
Female
Himalayas
Humans
Interviews as Topic
Male
Occupational therapy
Occupations
remote area
Rural Population
Service provision
Tibet
Villages
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Summary:Abstract The aim of this paper is to explore and describe the experiences of Tibetan families living in remote villages that have a child with disabilities. Focusing on their specific situations and the influences on their daily occupations, the study provides a deeper understanding of the families' experiences, perceptions, and expressed needs. Two families participated in an ethnographic study. Both participant observation and conversational interviews were used to collect data. A comparative data analysis revealed the following themes: 1) Families' views on disability and care provision: "What we have, we are willing to give"; 2) Families' occupational pressures: "One person needs to be the caregiver all the time"; 3) Families' desires: "That the child can feed and go to the toilet independently". Implications of the findings for practice in remote areas and cross-cultural contexts are discussed. These findings may help to provide a good foundation for occupational therapy practice in this context.
ISSN:1103-8128
1651-2014
DOI:10.3109/11038120903287174