Access to Stem Cells and Data: Persons, Property Rights, and Scientific Progress

Many fields have struggled to develop strategies, policies, or structures to optimally manage data, materials, and intellectual property rights (IPRs). There is growing recognition that the field of stem cell science, in part because of its complex IPRs landscape and the importance of cell line coll...

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Bibliographic Details
Published in:Science (American Association for the Advancement of Science) 2011-02, Vol.331 (6018), p.725-727
Main Authors: Mathews, Debra J.H, Graff, Gregory D, Saha, Krishanu, Winickoff, David E
Format: Article
Language:English
Subjects:
Access to Information
Biological Specimen Banks
Boundaries
Cell lines
Collection
Confidentiality
HeLa cells
Human genetics
Humans
Informed Consent
Intellectual Property
Landscapes
Materials research
Medical genetics
Optimization
Ownership
PERSPECTIVE
Pluripotent stem cells
Private property
Property rights
Public domain
Public Sector
Recognition
Stem Cell Research
Stem Cells
Strategy
Tissue Donors
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Summary:Many fields have struggled to develop strategies, policies, or structures to optimally manage data, materials, and intellectual property rights (IPRs). There is growing recognition that the field of stem cell science, in part because of its complex IPRs landscape and the importance of cell line collections, may require collective action to facilitate basic and translational research. Access to pluripotent stem cell lines and the information associated with them is critical to the progress of stem cell science, but simple notions of access are substantially complicated by shifting boundaries between what is considered information versus material, person versus artifact, and private property versus the public domain.
ISSN:0036-8075
1095-9203
DOI:10.1126/science.1201382