Improving Aboriginal health data capture: evidence from a health registry evaluation

The lack of high-quality health information for accurately estimating burdens of disease in some Aboriginal populations is a challenge for developing effective and relevant public health programmes and for health research. We evaluated data from a health registry system that captured patient consult...

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Bibliographic Details
Published in:Epidemiology and infection 2011-11, Vol.139 (11), p.1774-1783
Main Authors: HARPER, S. L., EDGE, V. L., SCHUSTER-WALLACE, C. J., AR-RUSHDI, M., McEWEN, S. A.
Format: Article
Language:English
Subjects:
Biological and medical sciences
Biomedical data
Canada - epidemiology
Clinics
Data coding
Data collection
Data quality
Disease control
Diseases
E-books
Electronic Health Records
Epidemiology
Ethnicity
Female
Fundamental and applied biological sciences. Psychology
Gastrointestinal diseases
Gastrointestinal Diseases - epidemiology
Gastrointestinal Diseases - ethnology
Health surveillance
Humans
Infant mortality
International Statistical Classification of Diseases
Interviews
Inuit
Inuits - statistics & numerical data
Male
Methods
Microbiology
Native peoples
Newfoundland and Labrador
Northern communities
Nurses
Population Surveillance - methods
Public health
Registries
Surveillance
Water quality
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Summary:The lack of high-quality health information for accurately estimating burdens of disease in some Aboriginal populations is a challenge for developing effective and relevant public health programmes and for health research. We evaluated data from a health registry system that captured patient consultations, provided by Labrador Grenfell Health (Labrador, Canada). The goal was to evaluate the registry's utility and attributes using modified CDC guidelines for evaluating surveillance systems. Infectious gastrointestinal illness data were used as a reference syndrome to determine various aspects of data collection and quality. Key-informant interviews were conducted to provide information about system utility. The study uncovered limitations in data quality and accessibility, resulting in region-specific recommendations including conversion to an electronic system. More generally, this study emphasized how a systematic and standardized evaluation of health registry systems can help address challenges to obtaining quality health data in often remote areas where many Aboriginal communities are found.
ISSN:0950-2688
1469-4409
DOI:10.1017/S095026881000275X