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Improving Aboriginal health data capture: evidence from a health registry evaluation
The lack of high-quality health information for accurately estimating burdens of disease in some Aboriginal populations is a challenge for developing effective and relevant public health programmes and for health research. We evaluated data from a health registry system that captured patient consult...
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| Published in: | Epidemiology and infection 2011-11, Vol.139 (11), p.1774-1783 |
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| Main Authors: | , , , , |
| Format: | Article |
| Language: | English |
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| cited_by | cdi_FETCH-LOGICAL-c466t-69ea66ca5c9986058f0cabfd977dde27a130db59d99f64e3406b7a66cd612ad53 |
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| cites | cdi_FETCH-LOGICAL-c466t-69ea66ca5c9986058f0cabfd977dde27a130db59d99f64e3406b7a66cd612ad53 |
| container_end_page | 1783 |
| container_issue | 11 |
| container_start_page | 1774 |
| container_title | Epidemiology and infection |
| container_volume | 139 |
| creator | HARPER, S. L. EDGE, V. L. SCHUSTER-WALLACE, C. J. AR-RUSHDI, M. McEWEN, S. A. |
| description | The lack of high-quality health information for accurately estimating burdens of disease in some Aboriginal populations is a challenge for developing effective and relevant public health programmes and for health research. We evaluated data from a health registry system that captured patient consultations, provided by Labrador Grenfell Health (Labrador, Canada). The goal was to evaluate the registry's utility and attributes using modified CDC guidelines for evaluating surveillance systems. Infectious gastrointestinal illness data were used as a reference syndrome to determine various aspects of data collection and quality. Key-informant interviews were conducted to provide information about system utility. The study uncovered limitations in data quality and accessibility, resulting in region-specific recommendations including conversion to an electronic system. More generally, this study emphasized how a systematic and standardized evaluation of health registry systems can help address challenges to obtaining quality health data in often remote areas where many Aboriginal communities are found. |
| doi_str_mv | 10.1017/S095026881000275X |
| format | article |
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| ispartof | Epidemiology and infection, 2011-11, Vol.139 (11), p.1774-1783 |
| issn | 0950-2688 1469-4409 |
| language | eng |
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| source | PubMed (Medline); JSTOR Archival Journals and Primary Sources Collection; Cambridge University Press:Jisc Collections:Cambridge University Press Read and Publish Agreement 2021-24 (Reading list) |
| subjects | Biological and medical sciences Biomedical data Canada - epidemiology Clinics Data coding Data collection Data quality Disease control Diseases E-books Electronic Health Records Epidemiology Ethnicity Female Fundamental and applied biological sciences. Psychology Gastrointestinal diseases Gastrointestinal Diseases - epidemiology Gastrointestinal Diseases - ethnology Health surveillance Humans Infant mortality International Statistical Classification of Diseases Interviews Inuit Inuits - statistics & numerical data Male Methods Microbiology Native peoples Newfoundland and Labrador Northern communities Nurses Population Surveillance - methods Public health Registries Surveillance Water quality |
| title | Improving Aboriginal health data capture: evidence from a health registry evaluation |
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