A longitudinal comparison of consumer-directed and agency-directed personal assistance service programmes among persons with physical disabilities

Purpose. To compare outcomes for persons who were enrolled in an agency-directed personal assistance services (PAS) programme and then changed to a consumer-directed PAS programme. Method. A convenience sample was used for this longitudinal study. In-home interviews were conducted by a trained data...

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Bibliographic Details
Published in:Disability and rehabilitation 2008, Vol.30 (9), p.689-695
Main Authors: Clark, Mary J., Hagglund, Kristofer J., Sherman, Ashley K.
Format: Article
Language:English
Subjects:
Activities of Daily Living
Adult
Consumerism
Disability
Disabled people
Disabled Persons
Female
Health services
health services evaluation
Home Care Agencies
Home Health Aides
Humans
Interviews as Topic
Long term care
Longitudinal Studies
Male
Middle Aged
Models, Organizational
patient acceptance of health care
Patient Satisfaction
personal health services
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Summary:Purpose. To compare outcomes for persons who were enrolled in an agency-directed personal assistance services (PAS) programme and then changed to a consumer-directed PAS programme. Method. A convenience sample was used for this longitudinal study. In-home interviews were conducted by a trained data collector from April 2000 to December 2001. Results. Participants reported more satisfaction and safety with personal assistance, and fewer unmet needs after receiving consumer-directed services than after receiving agency-directed services. Other variables related to outcomes included race and ethnicity, employment, functional status, unmet needs, and the level of confidence in obtaining help if assistance is unavailable. Participants (74%) also reported high rates of unmet needs in the past month. Conclusions. Consumer-directed PAS enhances outcomes for many persons with disabilities. Self-reported outcomes are affected by many factors that could be addressed in PAS program development.
ISSN:0963-8288
1464-5165
DOI:10.1080/09638280701463878