Psychological correlates of adherence to photoprotection in a rare disease: International survey of people with Xeroderma Pigmentosum

Objectives Xeroderma pigmentosum (XP) is an extremely rare genetic disorder (approximately 100 known cases in the United Kingdom), where DNA damage caused by ultraviolet radiation in daylight cannot be repaired. Adherence to photoprotection is essential to prevent skin cancer. We investigated psycho...

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Bibliographic Details
Published in:British journal of health psychology 2019-09, Vol.24 (3), p.668-686
Main Authors: Walburn, Jessica, Canfield, Martha, Norton, Sam, Sainsbury, Kirby, Araújo‐Soares, Vera, Foster, Lesley, Berneburg, Mark, Sarasin, Alain, Morrison‐Bowen, Natalie, Sniehotta, Falko F., Sarkany, Robert, Weinman, John
Format: Article
Language:English
Subjects:
Adherence
Adult
Adults
Automaticity
Avoidance behavior
Beliefs
Cancer
Caregivers
Chronic illnesses
Cognitive impairment
Cross-Sectional Studies
Daylight
Demography
Deoxyribonucleic acid
DNA
Efficacy
Europe
Face (Body)
Female
Genetics
Germany
Health Behavior
High risk
Humans
illness perceptions
Illnesses
Incidence
Lifestyles
Locus of control
Male
Medical treatment
Original
Patients
Perceived control
Perceptions
photoprotection
Polls & surveys
Protection
Psychological distress
Radiation
Radiation Protection
Rare Diseases
Risk
Risk perception
Self Efficacy
Skin
Skin cancer
Skin Neoplasms - prevention & control
Social support
Surveys and Questionnaires
treatment beliefs
Treatment compliance
Ultraviolet radiation
Ultraviolet Rays - adverse effects
United Kingdom
Xeroderma Pigmentosum
Xeroderma Pigmentosum - therapy
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