The emotional ramifications of unmet need in dementia caregiving

Using a unique measure of unmet need that taps into several dimensions of informal long-term care, the present study included data from 694 informal caregivers of persons suffering from dementia at different times in the caregiving career (e.g., at home, following institutionalization, following the...

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Bibliographic Details
Published in:American journal of Alzheimer's disease and other dementias 2004-11, Vol.19 (6), p.369-380
Main Authors: Gaugler, Joseph E., Anderson, Keith A., Leach, Corinne R., Smith, Charles D., Schmitt, Frederick A., Mendiondo, Marta
Format: Article
Language:English
Subjects:
Activities of Daily Living
Affect
Aged
Alzheimer Disease - therapy
Bereavement
Caregivers
Health Services for the Aged - organization & administration
Health Services Needs and Demand
Humans
Long-Term Care
Palliative Care
Surveys and Questionnaires
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Summary:Using a unique measure of unmet need that taps into several dimensions of informal long-term care, the present study included data from 694 informal caregivers of persons suffering from dementia at different times in the caregiving career (e.g., at home, following institutionalization, following the death of the care recipient). Multivariate regression models found that unmet need for either confidante or formal support had key implications for caregivers’ emotional distress in each of the care situations. The findings suggest that conceptual models should incorporate unmet need as a viable predictor of caregiving outcomes and that assessment of unmet need may provide guidance in the development of more refined psychosocial and community-based intervention protocols.
ISSN:1533-3175
1938-2731
DOI:10.1177/153331750401900605