Use of social support during communication about sickle cell carrier status

• Published in: Patient education and counseling 2012-08, Vol.88 (2), p.203-208
• Main Authors: Bradford, Lisa, Roedl, Sara J, Christopher, Stephanie A, Farrell, Michael H
• Format: Article
• Language: English
• Subjects: Adult; Anaemia; Anemia, Sickle Cell - diagnosis; Anemia, Sickle Cell - genetics; Biological and medical sciences; Carriers; Classification; Communication; Female; Genetic Testing; Humans; Infant, Newborn; Internal Medicine; Male; Medical sciences; Miscellaneous; Neonatal Screening - methods; Newborn screening results; Parents - psychology; Patient Simulation; Patient-provider communication; Physician-Patient Relations; Primary Health Care; Public health. Hygiene; Public health. Hygiene-occupational medicine; Sickle Cell Anemia; Social networks; Social Support; Wisconsin
• ISSN: 0738-3991; 1873-5134
• DOI: 10.1016/j.pec.2012.03.018

Abstract Objective To examine the use of social support behaviors by primary care providers during delivery of positive newborn screening results for Sickle Cell Anemia carrier status. Methods Transcripts from 125 primary care providers who conveyed Sickle Cell Anemia carrier status to standardized parents were content analyzed using categories derived from Cutrona and Suhr's social support taxonomy. Frequencies and cross-tabulation matrices were calculated to study providers’ social support utilization. Results Results showed most primary care providers (80%) incorporate social support behaviors into delivery of Sickle Cell Anemia carrier results and most frequently employed social network (61.6%) and informational support (38.4%) behaviors. Providers used tangible aid (8%), esteem (1.6%), and emotional support (9.6%) behaviors less frequently. Conclusion Cutrona and Suhr's taxonomy may be a useful tool for assessing supportive communication during the delivery of Sickle Cell Anemia carrier status and could be incorporated into population scale assessments of communication quality assurance. Practice implications Primary care providers may need training in how to adapt supportive behaviors to parents’ needs during communication of Sickle Cell Anemia carrier status. They also may benefit from specific training about how to use esteem and emotional support.