Survivor typologies predict medical surveillance participation: the childhood cancer survivor study

• Published in: Psycho-oncology (Chichester, England) England), 2013-07, Vol.22 (7), p.1534-1542
• Main Authors: Cox, Cheryl L., Zhu, Liang, Hudson, Melissa M., Steen, Brenda D., Robison, Leslie L., Oeffinger, Kevin C.
• Format: Article
• Language: English
• Subjects: Adolescent; Adult; At risk; Bone Density; Bones; Cancer; Child development; childhood cancer; Densitometry; Echocardiography; Female; Follow-Up Studies; Humans; late effects; Male; Mammography; Mass Screening - methods; Medical screening; Middle Aged; Motivation; Neoplasms - psychology; Oncology; Outcome Assessment (Health Care); Patient Acceptance of Health Care - psychology; Patient Compliance; pediatric oncology; Pediatrics; Retrospective Studies; Screening; Surveillance; Surveys and Questionnaires; Survivor; Survivors; Survivors - psychology; Young Adult
• ISSN: 1057-9249; 1099-1611
• DOI: 10.1002/pon.3167

Background Adult survivors of childhood cancer adhere poorly to recommended medical surveillance. We sought to identify modifiable factors that contribute to non‐adherence. Methods Latent class analysis categorized survivors (ages 18–52 years) at risk of cardiac, breast, or bone late sequelae on the basis of their health‐related concerns, fears, and motivation. These classifications were compared at two time points for self‐reported adherence to recommended echocardiography, mammography, and bone densitometry screening. Results Three classes (worried, collaborative, and self‐controlling) characterized survivors in each of the three risk groups: cardiac (N = 564; Bayesian information criterion [BIC] = 10,824.66; Lo–Mendell–Rubin parametric likelihood ratio test [LRMLRT] P = .002), breast (N = 584; BIC = 11,779.97; LRMLRT P