Using Qualitative Methods to Evaluate a Family Behavioral Intervention for Type 1 Diabetes

• Published in: Journal of pediatric health care 2014-09, Vol.28 (5), p.376-385
• Main Authors: Herbert, Linda Jones, PhD, Sweenie, Rachel, BA, Kelly, Katherine Patterson, RN, PhD, Holmes, Clarissa, PhD, Streisand, Randi, PhD
• Format: Article
• Language: English
• Subjects: Adaptation, Psychological; Adolescent; Adolescent Behavior - psychology; Adolescent Health Services - organization & administration; adolescents; Adult; Advanced Practice Nursing; Behavior Therapy - methods; behavioral intervention; Blood Glucose Self-Monitoring; Conflict (Psychology); Diabetes Mellitus, Type 1 - psychology; Diabetes Mellitus, Type 1 - therapy; Evaluation Studies as Topic; Family Therapy; Female; Health Knowledge, Attitudes, Practice; Humans; Male; Medication Adherence; Middle Aged; Nursing; Parent-Child Relations; Parenting - psychology; Parents - education; Parents - psychology; Patient Education as Topic; Pediatrics; Program Evaluation; Qualitative; Randomized Controlled Trials as Topic; Self Care - methods; Self Care - psychology; Treatment Outcome; type 1 diabetes
• ISSN: 0891-5245; 1532-656X
• DOI: 10.1016/j.pedhc.2013.09.002

Abstract Introduction The objectives of this study were to qualitatively evaluate a dyadic adolescent-parent type 1 diabetes (T1D) program developed to prevent deterioration in diabetes care among adolescents with T1D and provide recommendations for program refinement. Method Thirteen adolescent-parent dyads who participated in the larger randomized controlled trial, the TeamWork Project, were interviewed regarding their perceptions of their participation in the program and current T1D challenges. Interviews were transcribed and coded to establish broad themes. Results Adolescents and parents thought the TeamWork Project sessions were helpful and taught them new information. Five themes catalog findings from the qualitative interviews: TeamWork content, TeamWork structure, transition of responsibility, current and future challenges, and future intervention considerations. Discussion Addressing T1D challenges as a parent-adolescent dyad via a behavioral clinic program is helpful to families during adolescence. Findings highlight the utility of qualitative evaluation to tailor interventions for the unique challenges related to pediatric chronic illness.