The Convention on the Rights of Persons with Disabilities: a foundation for ethical disability and health research in developing countries

The United Nations Convention on the Rights of Persons with Disabilities (CRPD) has foregrounded disability as a human rights and equity issue, elevating it to a priority global research area. Academics from Western universities are likely to play an increasing role in disability health research in...

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Bibliographic Details
Published in:American journal of public health (1971) 2014-11, Vol.104 (11), p.2037-2043
Main Authors: Durham, Jo, Brolan, Claire E, Mukandi, Bryan
Format: Article
Language:English
Subjects:
Cross-Cultural Comparison
Decision making
Developing Countries
Disability
Disabled Persons
Ethics
Ethics, Research
Global Health
Health Services Research
Human Rights
Humans
Informed consent
LDCs
Medical research
People with disabilities
Public health
Public Health Approaches to Protecting Vulnerable Populations
Research ethics
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Summary:The United Nations Convention on the Rights of Persons with Disabilities (CRPD) has foregrounded disability as a human rights and equity issue, elevating it to a priority global research area. Academics from Western universities are likely to play an increasing role in disability health research in developing countries. In such contexts, there is a need to bridge the gap between procedural ethics and the realities of disability research in cross-cultural contexts. We provide guidance on engaging in ethical disability health research that intersects with and upholds the CRPD. We highlight challenges and tensions in doing so, underscoring the need to be sensitive to the sociocultural and political context of disability that determines how ethical research should proceed. We conclude with 5 recommendations.
ISSN:0090-0036
1541-0048
DOI:10.2105/AJPH.2014.302006