Same Agency, Different Teams: Perspectives From Home and Inpatient Hospice Care

Tremendous growth in hospice over the past 30 years in the United States has increased the number of terminally ill patients dying at home. Recently, however, more hospice patients are dying at inpatient facilities. To understand the varying perceptions about care in the home and inpatient hospice,...

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Bibliographic Details
Published in:Qualitative health research 2015-07, Vol.25 (7), p.923-931
Main Authors: Lysaght Hurley, Susan, Barg, Frances K., Strumpf, Neville, Ersek, Mary
Format: Article
Language:English
Subjects:
Anthropology, Cultural
Caregivers
Caregivers - psychology
Comparative analysis
Families & family life
Health technology assessment
Home Care Services - organization & administration
Home health care
Hospice care
Hospice Care - organization & administration
Hospice Care - psychology
Humans
Inpatients
Interviews as Topic
Palliative care
Patient Care Team - organization & administration
Perceptions
Professional Role
Terminal Care - organization & administration
Terminal Care - psychology
United States
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Summary:Tremendous growth in hospice over the past 30 years in the United States has increased the number of terminally ill patients dying at home. Recently, however, more hospice patients are dying at inpatient facilities. To understand the varying perceptions about care in the home and inpatient hospice, we conducted semistructured interviews with 24 interdisciplinary team (IDT) members and analyzed the data using the constant comparative method. Core interdisciplinary tasks, including identifying the focus of energy, tailoring family caregiver involvement, acknowledging who is in charge, and knowing both sides differed in the home and inpatient settings. Despite the overarching umbrella of hospice care, home and inpatient hospice settings create different foci for IDT members, burdens and privileges for family caregivers, and control of the care plan. Key differences between home and inpatient hospice processes of care highlight the complexity of patient-centered end-of-life care in the United States.
ISSN:1049-7323
1552-7557
DOI:10.1177/1049732314554091