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Applicability of the SMART Model of Transition Readiness for Sickle-Cell Disease
This study aimed to examine the applicability of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) model for adolescents and young adults (AYA) with sickle-cell disease (SCD). 14 AYA with SCD (14-24 years old) and 10 clinical experts (6-20 years of experience)...
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Published in: | Journal of pediatric psychology 2016-06, Vol.41 (5), p.543-554 |
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container_title | Journal of pediatric psychology |
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creator | Mulchan, Siddika S Valenzuela, Jessica M Crosby, Lori E Diaz Pow Sang, Claudia |
description | This study aimed to examine the applicability of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) model for adolescents and young adults (AYA) with sickle-cell disease (SCD).
14 AYA with SCD (14-24 years old) and 10 clinical experts (6-20 years of experience) completed semi-structured interviews. AYA completed brief questionnaires. Interviews were coded for themes, which were reviewed to determine their fit within the SMART model.
Overall, most themes were consistent with the model (e.g., sociodemographics/culture, neurocognition/IQ, etc.). Factors related to race/culture, pain management, health-care navigation skills, societal stigma, and lack of awareness about SCD were salient for AYA with SCD.
Findings suggest the SMART model may be appropriate in SCD with the consideration of disease-related stigma. This study is a step toward developing a disease-specific model of transition readiness for SCD. Future directions include the development of a measure of transition readiness for this population. |
doi_str_mv | 10.1093/jpepsy/jsv120 |
format | article |
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14 AYA with SCD (14-24 years old) and 10 clinical experts (6-20 years of experience) completed semi-structured interviews. AYA completed brief questionnaires. Interviews were coded for themes, which were reviewed to determine their fit within the SMART model.
Overall, most themes were consistent with the model (e.g., sociodemographics/culture, neurocognition/IQ, etc.). Factors related to race/culture, pain management, health-care navigation skills, societal stigma, and lack of awareness about SCD were salient for AYA with SCD.
Findings suggest the SMART model may be appropriate in SCD with the consideration of disease-related stigma. This study is a step toward developing a disease-specific model of transition readiness for SCD. Future directions include the development of a measure of transition readiness for this population.</description><identifier>ISSN: 0146-8693</identifier><identifier>EISSN: 1465-735X</identifier><identifier>DOI: 10.1093/jpepsy/jsv120</identifier><identifier>PMID: 26717957</identifier><language>eng</language><publisher>United States: Oxford University Press</publisher><subject>Adolescent ; Anemia, Sickle Cell - psychology ; Anemia, Sickle Cell - therapy ; Female ; Humans ; Male ; Models, Psychological ; Qualitative Research ; Regular ; Surveys and Questionnaires ; Transition to Adult Care ; Young Adult</subject><ispartof>Journal of pediatric psychology, 2016-06, Vol.41 (5), p.543-554</ispartof><rights>The Author 2015. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.</rights><rights>The Author 2015. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com 2015</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c387t-944b3d3d6e6e17ecadd19307b8f2d8535ef2575be4a041e3af9f4e4c5098750a3</citedby><cites>FETCH-LOGICAL-c387t-944b3d3d6e6e17ecadd19307b8f2d8535ef2575be4a041e3af9f4e4c5098750a3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,314,776,780,881,27903,27904</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/26717957$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Mulchan, Siddika S</creatorcontrib><creatorcontrib>Valenzuela, Jessica M</creatorcontrib><creatorcontrib>Crosby, Lori E</creatorcontrib><creatorcontrib>Diaz Pow Sang, Claudia</creatorcontrib><title>Applicability of the SMART Model of Transition Readiness for Sickle-Cell Disease</title><title>Journal of pediatric psychology</title><addtitle>J Pediatr Psychol</addtitle><description>This study aimed to examine the applicability of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) model for adolescents and young adults (AYA) with sickle-cell disease (SCD).
14 AYA with SCD (14-24 years old) and 10 clinical experts (6-20 years of experience) completed semi-structured interviews. AYA completed brief questionnaires. Interviews were coded for themes, which were reviewed to determine their fit within the SMART model.
Overall, most themes were consistent with the model (e.g., sociodemographics/culture, neurocognition/IQ, etc.). Factors related to race/culture, pain management, health-care navigation skills, societal stigma, and lack of awareness about SCD were salient for AYA with SCD.
Findings suggest the SMART model may be appropriate in SCD with the consideration of disease-related stigma. This study is a step toward developing a disease-specific model of transition readiness for SCD. Future directions include the development of a measure of transition readiness for this population.</description><subject>Adolescent</subject><subject>Anemia, Sickle Cell - psychology</subject><subject>Anemia, Sickle Cell - therapy</subject><subject>Female</subject><subject>Humans</subject><subject>Male</subject><subject>Models, Psychological</subject><subject>Qualitative Research</subject><subject>Regular</subject><subject>Surveys and Questionnaires</subject><subject>Transition to Adult Care</subject><subject>Young Adult</subject><issn>0146-8693</issn><issn>1465-735X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2016</creationdate><recordtype>article</recordtype><recordid>eNpVkc9LwzAUx4Mobk6PXqVHL3VJkzTpRRjzJ0yUbYK3kKavLrNratMN9t_b0Tn09Hjvffi-H1-ELgm-ITihw2UFld8Ol35DInyE-oTFPBSUfxyjPm6TUMYJ7aEz75cYY8ZofIp6USyISLjoo7dRVRXW6NQWttkGLg-aBQSzl9F0Hry4DIpdaV7r0tvGujKYgs5sCd4HuauDmTVfBYRjKIrgznrQHs7RSa4LDxf7OEDvD_fz8VM4eX18Ho8moaFSNGHCWEozmsUQAxFgdJaRhGKRyjzKJKcc8ogLngLTmBGgOk9yBsxwnEjBsaYDdNvpVut0BZmBsql1oararnS9VU5b9b9T2oX6dBvFpJSEsFbgei9Qu-81-EatrDftJboEt_aKCJlEOI6laNGwQ03tvK8hP4whWO1cUJ0LqnOh5a_-7nagf99OfwAECYam</recordid><startdate>20160601</startdate><enddate>20160601</enddate><creator>Mulchan, Siddika S</creator><creator>Valenzuela, Jessica M</creator><creator>Crosby, Lori E</creator><creator>Diaz Pow Sang, Claudia</creator><general>Oxford University Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20160601</creationdate><title>Applicability of the SMART Model of Transition Readiness for Sickle-Cell Disease</title><author>Mulchan, Siddika S ; Valenzuela, Jessica M ; Crosby, Lori E ; Diaz Pow Sang, Claudia</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c387t-944b3d3d6e6e17ecadd19307b8f2d8535ef2575be4a041e3af9f4e4c5098750a3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2016</creationdate><topic>Adolescent</topic><topic>Anemia, Sickle Cell - psychology</topic><topic>Anemia, Sickle Cell - therapy</topic><topic>Female</topic><topic>Humans</topic><topic>Male</topic><topic>Models, Psychological</topic><topic>Qualitative Research</topic><topic>Regular</topic><topic>Surveys and Questionnaires</topic><topic>Transition to Adult Care</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Mulchan, Siddika S</creatorcontrib><creatorcontrib>Valenzuela, Jessica M</creatorcontrib><creatorcontrib>Crosby, Lori E</creatorcontrib><creatorcontrib>Diaz Pow Sang, Claudia</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of pediatric psychology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Mulchan, Siddika S</au><au>Valenzuela, Jessica M</au><au>Crosby, Lori E</au><au>Diaz Pow Sang, Claudia</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Applicability of the SMART Model of Transition Readiness for Sickle-Cell Disease</atitle><jtitle>Journal of pediatric psychology</jtitle><addtitle>J Pediatr Psychol</addtitle><date>2016-06-01</date><risdate>2016</risdate><volume>41</volume><issue>5</issue><spage>543</spage><epage>554</epage><pages>543-554</pages><issn>0146-8693</issn><eissn>1465-735X</eissn><abstract>This study aimed to examine the applicability of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) model for adolescents and young adults (AYA) with sickle-cell disease (SCD).
14 AYA with SCD (14-24 years old) and 10 clinical experts (6-20 years of experience) completed semi-structured interviews. AYA completed brief questionnaires. Interviews were coded for themes, which were reviewed to determine their fit within the SMART model.
Overall, most themes were consistent with the model (e.g., sociodemographics/culture, neurocognition/IQ, etc.). Factors related to race/culture, pain management, health-care navigation skills, societal stigma, and lack of awareness about SCD were salient for AYA with SCD.
Findings suggest the SMART model may be appropriate in SCD with the consideration of disease-related stigma. This study is a step toward developing a disease-specific model of transition readiness for SCD. Future directions include the development of a measure of transition readiness for this population.</abstract><cop>United States</cop><pub>Oxford University Press</pub><pmid>26717957</pmid><doi>10.1093/jpepsy/jsv120</doi><tpages>12</tpages><oa>free_for_read</oa></addata></record> |
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subjects | Adolescent Anemia, Sickle Cell - psychology Anemia, Sickle Cell - therapy Female Humans Male Models, Psychological Qualitative Research Regular Surveys and Questionnaires Transition to Adult Care Young Adult |
title | Applicability of the SMART Model of Transition Readiness for Sickle-Cell Disease |
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