Caregiver perspectives on the social competence of pediatric brain tumor survivors

ᅟ Pediatric brain tumor survivors are at risk for significant difficulties related to social competence. Little research has examined factors that contribute to survivor social problems. Purpose The current study is grounded in a model of social competence for youth with brain disorder and used qual...

Full description

Saved in:
Bibliographic Details
Published in:Supportive care in cancer 2017-12, Vol.25 (12), p.3749-3757
Main Authors: Hocking, Matthew C., Quast, Lauren F., Brodsky, Cole, Deatrick, Janet A.
Format: Article
Language:English
Subjects:
Adolescent
Analysis
Brain cancer
Brain Neoplasms - psychology
Brain research
Brain tumors
Cancer Survivors - psychology
Caregivers
Caregivers - psychology
Child
Executive Function
Female
Focus Groups
Head Start project
Humans
Male
Medicine
Medicine & Public Health
Middle Aged
Models, Psychological
Nursing
Nursing Research
Oncology
Original Article
Pain Medicine
Pediatrics
Psychometrics
Rehabilitation Medicine
Social Adjustment
Social aspects
Social Environment
Social Skills
Tumors
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:ᅟ Pediatric brain tumor survivors are at risk for significant difficulties related to social competence. Little research has examined factors that contribute to survivor social problems. Purpose The current study is grounded in a model of social competence for youth with brain disorder and used qualitative and quantitative methods to obtain caregiver perspectives on survivor social competence and identify pertinent risk and resistance factors. Methods The study occurred in two phases, including focus groups with 36 caregivers of 24 survivors and confirmatory interviews with 12 caregivers of 12 survivors. Results Qualitative content analyses resulted in three themes that were illustrative of the model of social competence. Themes included (1) the impact of survivor sequelae on social function; (2) the role of family in evaluating and promoting survivor social development; and (3) the match between the survivor’s social context and developmental needs. Quantitative data supported the associations between survivor social skills, survivor executive function, and family functioning. Conclusions Overall, findings underscore the influence of risk and resistance factors across different systems on survivor social competence and suggest directions for future research and intervention efforts.
ISSN:0941-4355
1433-7339
DOI:10.1007/s00520-017-3805-6