Use and impact of an online community for hospital patients

• Published in: Journal of the American Medical Informatics Association : JAMIA 2020-04, Vol.27 (4), p.549-557
• Main Authors: Haldar, Shefali, Mishra, Sonali R, Kim, Yoojung, Hartzler, Andrea, Pollack, Ari H, Pratt, Wanda
• Format: Article
• Language: English
• Subjects: Adolescent; Adult; Aged; Child; Female; Hospitalization; Humans; Inpatients; Internet; Interviews as Topic; Male; Middle Aged; Online Social Networking; Peer Group; Research and Applications; Social Support; Young Adult
• ISSN: 1527-974X; 1067-5027; 1527-974X
• DOI: 10.1093/jamia/ocz212

Abstract Objective Although patient-peer support technologies have demonstrated effectiveness in a variety of health contexts—including diabetes, weight loss, and cancer—less is known about how hospitalized patients can benefit from this support. We investigated the nature of peer support in the hospital and the impact this support had on patients’ hospital stays. Materials and Methods We created a technology, resembling an online health community, in which patients could exchange advice about their hospitalization. We deployed it at 1 pediatric hospital and 1 adult hospital. With 30 participants, we conducted bedside interviews, observed how they used the technology during their hospitalization, and completed follow-up phone interviews. Results Participants shared advice about several topics, including adjusting to the hospital and building relationships with providers. Contrary to concerns that such a system would primarily serve as a place for patients to “complain,” sentiment analysis showed that 23 of 36 (64%) of the shared advice reflected positive sentiment. Patients also reported positive impacts to their quality, safety, and hospital experience due to the inpatient peer support community. Discussion Participants benefited from peer support that transcended diagnoses and individual health conditions. The shared experience of being in the hospital was sufficient to yield valuable and practical peer support. Participants who did not contribute their own advice still experienced benefits from reading their peers’ advice. Conclusions Our study demonstrated the positive nature of peer advice exchanged, and the benefits of this advice on patients’ hospital stays. Inpatient peer support technologies could be an additional resource for patients to engage in their care.