Support/services and family carers of persons with stroke impairment: perceived importance and services received

To examine what family carers of persons with stroke impairment perceive as important support and service quality characteristics in relation to their experienced strain/burden, and to explore to what extent family carers receive support/services perceived as important. Data from a cross-sectional s...

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Bibliographic Details
Published in:Journal of rehabilitation medicine 2011-02, Vol.43 (3), p.204-209
Main Authors: Krevers, Barbro, Oberg, Birgitta
Format: Article
Language:English
Subjects:
Adult
Aged
Burden
Caregivers - psychology
Carers
Caretaker syndrome
Cost of Illness
Counseling - standards
Cross-Sectional Studies
family carers
Female
Humans
Male
MEDICIN
MEDICINE
Middle Aged
Perceptions
quality
Quality Control
Quality of Life
Quality of service
Respite Care - standards
service
Social Support
Spouses - psychology
stroke
Stroke - physiopathology
Stroke - psychology
Stroke Rehabilitation
Strokes
support
Surveys and Questionnaires
Sweden
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Description
Summary:To examine what family carers of persons with stroke impairment perceive as important support and service quality characteristics in relation to their experienced strain/burden, and to explore to what extent family carers receive support/services perceived as important. Data from a cross-sectional study. A sample of 183 family carers in Sweden, 64 experiencing lower and 119 experiencing higher strain/burden, a subsample of the EUROFAMCARE project. Carers were interviewed using a structured questionnaire. There are few differences between carers experiencing high and low strain/burden in what they perceive and receive in terms of important support and service quality characteristics. Information, relief, and counselling support/services are highly valued. It is also important that services improve quality of life, and have good process qualities regarding interaction with staff and individualization. Most services regarded as important are received by less than 60% of carers. The variation is rather high on an individual level in terms of what carers regard as important, indicating that factors other than negative impact may influence their perceptions of support/service and service quality. Thus, it is important to know carers' perceptions in order to individualize support/service, and thus make it more available and efficient.
ISSN:1650-1977
1651-2081
DOI:10.2340/16501977-0649