A multinational investigation of healthcare needs, preferences, and expectations in supportive cancer care: co-creating the LifeChamps digital platform

• Published in: Journal of cancer survivorship 2023-08, Vol.17 (4), p.1094-1110
• Main Authors: Marshall-McKenna, Rebecca, Kotronoulas, Grigorios, Kokoroskos, Emmanouil, Granados, Andrea Gil, Papachristou, Panagiotis, Papachristou, Nikolaos, Collantes, Gonzalo, Petridis, Georgios, Billis, Antonis, Bamidis, Panagiotis D.
• Format: Article
• Language: English
• Subjects: Adult; Breast cancer; Breast Neoplasms; Cancer; Cancer Survivors; Caregivers; Delivery of Health Care; Frustration; Health care; Health Informatics; Health Promotion and Disease Prevention; Health services; Humans; Male; Medical personnel; Medicine; Medicine & Public Health; Melanoma; Motivation; New technology; Oncology; Patients; Primary Care Medicine; Prostate cancer; Public Health; Quality of Life Research; Survival; Well being
• ISSN: 1932-2259; 1932-2267
• DOI: 10.1007/s11764-022-01289-7

Purpose This study is to evaluate healthcare needs, preferences, and expectations in supportive cancer care as perceived by cancer survivors, family caregivers, and healthcare professionals. Methods Key stakeholders consisted of cancer survivors diagnosed with breast cancer, prostate cancer, or melanoma; adult family caregivers; and healthcare professionals involved in oncology. Recruitment was via several routes, and data were collected via either online surveys or telephone interviews in Greece, Spain, Sweden, and the UK. Framework analysis was applied to the dataset. Results One hundred and fifty-five stakeholders participated: 70 cancer survivors, 23 family caregivers, and 62 healthcare professionals (13 clinical roles). Cancer survivors and family caregivers’ needs included information and support on practical/daily living, as frustration was apparent with the lack of follow-up services. Healthcare professionals agreed on a multidisciplinary health service with a “focus on the patient” and availability closer to home. Most healthcare professionals acknowledged that patient-reported outcomes may provide “better individualised care”. Cancer survivors and family caregivers generally felt that the digital platform would be useful for timely personalised support and aided communication. Healthcare professionals were supportive of the “proactive” functionality of the platform and the expected advantages. Anticipated challenges were integration obstacles such as workload/infrastructure and training/support in using the new technology. Conclusions Obtaining key stakeholders’ insights provided a foundation for action to further co-create the LifeChamps digital platform to meet needs and priorities and deliver enhanced supportive care to “older” cancer survivors. Implications for cancer survivors Co-creation provided insight into gaps where digital support may enhance health and well-being.