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Patient perspectives on key symptoms and preferences for follow-up after upper gastro-intestinal cancer surgery

Purpose Long-lasting symptoms and reductions in quality of life are common after oesophago-gastric surgery. Post-operative follow-up has traditionally focussed on tumour recurrence and survival, but there is a growing need to also identify and treat functional sequelae to improve patients’ recovery....

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Published in:Supportive care in cancer 2022-06, Vol.30 (6), p.5269-5275
Main Authors: Pucher, Philip H., Coombes, Annie, Evans, Orla, Taylor, Joanna, Moore, Jonathan L., White, Annabelle, Lagergren, Jesper, Baker, Cara, Kelly, Mark, Gossage, James A., Dunn, Jason, Zeki, Sebastian, Byrne, Ben E., Andreyev, Jervoise, Davies, Andrew R.
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Language:English
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Summary:Purpose Long-lasting symptoms and reductions in quality of life are common after oesophago-gastric surgery. Post-operative follow-up has traditionally focussed on tumour recurrence and survival, but there is a growing need to also identify and treat functional sequelae to improve patients’ recovery. Methods An electronic survey was circulated via a British national charity for patients undergoing oesophago-gastric surgery and their families. Patients were asked about post-operative symptoms they deemed important to their quality of life, as well as satisfaction and preferences for post-operative follow-up. Differences between satisfied and dissatisfied patients with reference to follow-up were assessed. Results Among 362 respondents with a median follow-up of 58 months since surgery (range 3–412), 36 different symptoms were reported as being important to recovery and quality of life after surgery, with a median of 13 symptoms per patient. Most (84%) respondents indicated satisfaction with follow-up. Satisfied patients were more likely to have received longer follow-up (5-year or longer follow-up 60% among satisfied patients vs 27% among unsatisfied, p  
ISSN:0941-4355
1433-7339
1433-7339
DOI:10.1007/s00520-022-06922-w