Patient empowerment and its correlates in young persons with congenital heart disease

Objective: The objective of this study was to measure the level of empowerment and identify its correlates in young persons with congenital heart disease. Study design: Patients aged 14–18 years with congenital heart disease, and under active follow-up in one of four paediatric cardiology centres in...

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Bibliographic Details
Published in:European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology 2019-06, Vol.18 (5), p.389-398
Main Authors: Acuña Mora, Mariela, Sparud-Lundin, Carina, Burström, Åsa, Hanseus, Katarina, Rydberg, Annika, Moons, Philip, Bratt, Ewa-Lena
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adolescent
Adolescent Behavior - psychology
Adolescents
Cardiovascular disease
congenital
Congenital diseases
correlates
Cross-Sectional Studies
Empowerment
Female
Heart
heart defects
Heart Defects, Congenital - epidemiology
Heart Defects, Congenital - psychology
Humans
Linear Models
Male
Medicin och hälsovetenskap
Multivariate Analysis
Nursing
Omvårdnad
patient empowerment
Patient Participation - psychology
Pediatrics
Quality of life
Quality of Life - psychology
Surveys and Questionnaires
Sweden - epidemiology
Teenagers
young persons
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Summary:Objective: The objective of this study was to measure the level of empowerment and identify its correlates in young persons with congenital heart disease. Study design: Patients aged 14–18 years with congenital heart disease, and under active follow-up in one of four paediatric cardiology centres in Sweden were invited to participate in a cross-sectional study. A total of 202 young persons returned the questionnaires. Patient empowerment was measured with the Gothenburg Young Persons Empowerment Scale that allows the calculation of total and subscale scores. Univariate and multivariate linear regression analyses were undertaken to analyse possible correlates, including: sex, age, health behaviours, knowledge of congenital heart disease, quality of life, patient-reported health, congenital heart disease complexity, transition readiness and illness perception. Results: The mean empowerment score was 54.6±10.6 (scale of 15–75). Univariate analyses showed that empowerment was associated with age, quality of life, transition readiness, illness perception, health behaviours and patient-reported health (perceived physical appearance, treatment anxiety, cognitive problems and communication issues). However, multivariable linear regression analyses identified that only transition readiness (β=0.28, P
ISSN:1474-5151
1873-1953
1873-1953
DOI:10.1177/1474515119835434