Quality of performance of everyday activities in children with spina bifida: a population-based study

Aim:  The aim of this study was to evaluate the quality of the performance of everyday activities in children with spina bifida. Methods:  Fifty children with spina bifida (of 65 children in a geographic cohort), aged 6 to14 years, were evaluated with Assessment of Motor and Process Skills. Results:...

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Bibliographic Details
Published in:Acta Paediatrica 2009-10, Vol.98 (10), p.1674-1679
Main Authors: Peny-Dahlstrand, M, Aahlander, A-C, Krumlinde-Sundholm, L, Gosman-Hedstroem, G
Format: Article
Language:English
Subjects:
Activities of Daily Living
Activity performance
ADL
Adolescent
Arbetsterapi
Assessment of Motor and Process Skills
Biological and medical sciences
Child
Cohort Studies
Diseases of the osteoarticular system
Female
General aspects
Humans
Interviews as Topic
Male
Malformations and congenital and or hereditary diseases involving bones. Joint deformations
Medical sciences
Miscellaneous
MMC
Motor Skills
Neurologi
Neurology
Nonparametric
Occupational Therapy
Other Social Sciences not elsewhere specified
physiopathology
Public health. Hygiene
Public health. Hygiene-occupational medicine
Reference Values
Spinal Dysraphism
Spinal Dysraphism - physiopathology
Statistics
Statistics, Nonparametric
Sweden
Task Performance and Analysis
Övrig annan samhällsvetenskap
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Summary:Aim:  The aim of this study was to evaluate the quality of the performance of everyday activities in children with spina bifida. Methods:  Fifty children with spina bifida (of 65 children in a geographic cohort), aged 6 to14 years, were evaluated with Assessment of Motor and Process Skills. Results:  Compared with age‐normative values, 60% of the children with spina bifida were found to have motor ability measures below 2 SD and 48% process ability measures below 2 SD. Most of the children with spina bifida had difficulties performing well‐known everyday activities in an effortless, efficient and independent way, relating to both motor and process skills. The motor skills hardest to accomplish involved motor planning and the process skills hardest to accomplish were adaptation of performance and initiations of new steps, thus actually getting the task done. Conclusion:  To reach autonomy in life, children with spina bifida may need particular guidance to learn not only how to do things but also how to get things done.
ISSN:0803-5253
1651-2227
1651-2227
DOI:10.1111/j.1651-2227.2009.01410.x